Recently, I was having a discussion about lupus. Because I’m a self-proclaimed joy junkie, I was asked why I say I am battling lupus instead of living with it. The word battle seems negative. I look at living with something as being accepting of the behavior that is exhibited…
Hurricane in Heels — Kellie McRae
Kellie is a lupus warrior who spends her time teaching many about the incurable disease she battles with a smile on her face. She travels the world, writes articles, has an active YouTube channel and creates coloring and activity books for both adults and children. She is known as Queen Bubbly Bee because no matter what is going on with her body, she always manages to find the silver lining.
As a kid, I was a big Carol Burnett fan. At the end of her variety show, she would sing a song called “I’m So Glad We Had This Time Together.” When it was over, she would tug on her ear. Today, I am tugging on my…
Lupus is not a happy disease, yet I have always been a joy junkie who looks for anything positive in my challenges. In my prior life, I was always physically active. Given what my body now endures with lupus, I have difficulty moving at my former hurricane pace.
After three years, some things are finally leveling out for me. When I was diagnosed with lupus three years ago, I really felt that the entire rug had been pulled out from under my life. In fact, it had. When you are told your body has turned against you and…
It doesn’t matter who you are, you have problems. We all have problems. I always say that even babies cry. We are all works in progress, and there is not one thing perfect about any of us. Sometimes, “healthy” people look on those who are not as if they are…
Lupus sucks. Let’s just acknowledge that from the onset. I was living an awesome life, and then it came to a screeching halt. Lupus was pretty aggressive with me. Almost immediately, I felt anxiety and confusion, and eventually, anger. These are signs of depression, but I didn’t know that at…
I spent almost 20 years working in real estate in Florida. I loved the work, as it had me at times out measuring homes, meeting new people, and spending time in the sun. Lupus says stay out of the sun, it eats your energy, and the pain…
It’s printed on T-shirts. It’s something we teach little boys when they fall and get the first scrape that brings tears to their eyes. It’s certainly something you learn if you join the military. I’m referring to the saying, “Pain is weakness leaving the body.” Well, I…
Imagine that it’s a beautiful, sunny, crisp fall afternoon. You look out of your window and decide that it’s a good day to rake up the leaves. You step outside into a near perfect day, take your rake, and get to work. You’ve made a nice pile of…
When I lived in Thailand, I made this funny video about the things people living in the U.S. take for granted. While the video was intended to be entertaining, some of the things I once took for granted are a challenge these days. With lupus, you can…
I find it funny the things that people choose to say and the words they withhold from you. Those of us living with a chronic illness such as lupus often hear, “You don’t look sick.” What we wish they meant was, “You look really good in spite…
I’ve seen many movies in which the characters are paid or forced to lose. A conflict of conscience always arises, even when their actions are to save a loved one or the money is to salvage the family home, farm, or whatever. A true fighter doesn’t really know…
I grew up in inner city Chicago, I am a Desert Storm veteran, I reared two amazing kids all alone, and I navigated the competitive waters of real estate for almost 20 years. Now, leaving my home is a challenge. Years ago, I saw a movie about an …
Recent Posts
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- FDA approves Gazyva as lupus nephritis treatment

