I recently came across an episode from the Lupus Foundation of America’s “The Expert Series” that focused on menopause and lupus. It reminded me of how important it is for us to talk about the changes our bodies go through, not only from lupus, but also because of…
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Pain management is difficult and complicated for people living with lupus. In my experience, nonsteroidal anti-inflammatory drugs and over-the-counter medications are weak, and opioid analgesics tend to fail. Even combined with home remedies, herbal teas, essential oils, heating pads, ice packs, and tinctures, lupus pain is often unmanageable. During…
If you live with lupus, you’ve probably asked yourself the same question I’ve asked hundreds of times: “Why did these symptoms suddenly appear?” Sometimes the answer was obvious. Other times, it felt like lupus symptoms had crashed into my life without warning. What I’ve learned over the past…
There is a term used often in publishing and media to acknowledge when a community, a niche group, or a marginalized people are included within a broader context of an issue or story. When an author is inclusive of a person or a group, it is intentional “representation.” We are…
“I’m so glad you’re here and you chose yourself.” That’s how wellness educator Staci Mitchell opened a series of virtual TARDIS Talks on lupus last month. Something about that statement caused us to pause and reflect during the session, as she acknowledged and celebrated our self-focused arrival. The idea…
The world’s largest catalog of library resources, WorldCat, lists more than 290,000 books with “lupus” in the title. When you search “lupus” on Google Scholar, more than 2.2 million articles come up. Neither is comprehensive, so you can imagine how many other books and articles might exist. That…
I am willing to bet a penny to your nickel (wink) that if you often “don’t look sick,” you usually don’t tell anyone when you feel the stirrings of a lupus flare. We all have different reasons for staying quiet and waiting before declaring how severe our…
There’s a question many of us are asked every single day: “How are you doing?” Over years of navigating lupus, appointments, societal expectations, and the quiet pressure to keep up and not be a burden, I’ve learned some reflexive answers: “I’m good.” “Hanging in there.” “I can’t complain.” After…
If ever you need the raw, unadulterated truth about living with lupus, you should attend diverse support group meetings. Make sure they are diverse and have a member or two with characteristics similar to yours, such as age, gender, symptoms, lifestyle, culture, and status. These lupus support group discussions…
Every year, as winter begins to fade away and the first hot day takes root, I feel a quiet anxiety about what comes next. For many people, spring is like a rebirth. It brings longer evenings, more sunshine, and the promise of beach trips, boat days, and outdoor concerts. But…
Recent Posts
- Twin Phase 3 studies recruiting adults with lupus skin problems in US, Canada
- Understanding how menopause can affect our lupus symptoms
- Discovering a role the vagus nerve plays in chronic pain management
- Recognizing patterns is one of my greatest weapons against lupus flares
- Flaws on the X chromosome may directly trigger lupus in women