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In dark moments with lupus, promise that you’ll fight for yourself

It’s so easy to jump on the woe-is-me, this-isn’t-fair, what-did-I-do-to-deserve-this bandwagon and shout, kick, and scream at the awful “bad luck” and horrible timing of chronic, incurable sickness.   Feeling like a victim and falling into grief can seem inescapable when unprovoked pain, flares of skin rashes, hair…

No one talks about the grief that chronic illness brings

Hey, friend, grab your tea and pull up a chair. I want to have an honest conversation about something we don’t talk about enough: grief. It’s not the kind of grief that comes with funerals and sympathy cards, but rather the quiet, sneaky kind that shows up when life doesn’t…

Putting my body on a performance improvement plan

As one year ends and another begins, many employers give job performance evaluations. That’s when, according to the Society for Human Resource Management, they or their supervisors commend workers for the impact they’ve made on the company and any recognizable or measurable outcomes they’ve helped produce. It’s also…

Bravo! While living with lupus, you can ‘do it real big.’

It’s amazing the number of times we hear people speak negatively about themselves or their circumstances. Staying free from the doldrums is a challenge when living with chronic, rare conditions. Honestly, who can stay positive when your body is home to an immune system that attacks and attacks and attacks?…

Life with lupus is hard, but with gratitude, suffering is optional

One of the most horrendous aspects of living with systemic lupus erythematosus (SLE) is dealing with the additional diseases and chronic conditions that lupus causes. Lupus is insidious; it ushers in more symptoms and new diagnoses without warning and then releases a brutal, wolfish attack. It’s torturous being the…

Finding our ways to the balanced seesaw of chronic illness

It’s no secret that living with lupus or other chronic illnesses often feels like a constant game of tug-of-war. One part of us aches to chase after our dreams, tackle projects, and seize life, while the other part is continually reminded of the need to slow down, conserve energy,…