Celebrate With Me — Candace Semien

I’m holding two bags of medicine recently prescribed to tackle a new condition that has caused me neurological damage. It’s another unprovoked manifestation of systemic lupus erythematosus. It took weeks to secure them because the prescribing rheumatologist was…

In November 2020, Louisiana-based counselor barbara w. green shared a warning in an article published on Medium: “Protect your important relationships from the coronavirus, just as you protect yourself from it. Patience with each other has become more…

There are six white seashells covered in sand that have been washed ashore by Lake Pontchartrain onto Lincoln Beach in New Orleans. It took me nearly half an hour to reach the spot where they lay. Because I was…

Lupus has this uncanny way of presenting me — its host — to the world. Wow. That’s the first time I’ve referred to myself, a person living with systemic lupus erythematosus, as a “host.” Since my diagnoses of…

Living with systemic lupus erythematosus and Sjögren’s syndrome is like building a house out of fragments. I gleaned that idea from Paulo Coelho’s 2024 collection of stories, “Maktub.” It’s an inspirational companion to his classic novel…

Disclosing your health status is one of the most fretful decisions in the chronic illness and rare disease stratosphere. For me, an afternoon tea helped to settle the fret, pull together a circle of friends, and set a…

I was staring at the hospital walls, whispering to myself, “I don’t understand this pain.” Neither did the emergency room physicians and the hospital’s admitting physician. They’d done their best to pin down the “great imitator” using every blood…

An interesting video is circulating on social media that I’ve seen more times than I can count. While it may be just a colloquial trend used to boost a content creator’s analytics, it still offers an interesting declaration. The…

When was the first time you heard the words “advocate” and “advocacy”? According to Dictionary.com, to advocate means “to speak or write in favor of; support or urge by argument; recommend publicly.” And the Cambridge Dictionary says…

We’ve all heard it. “But you don’t look sick.” There’s also “You still look good,” “That weight looks good on you (or off you),” and “I couldn’t tell you were that sick.” For quite some time, conversations among people…

Since 1986, Delta airlines has consistently served Biscoff cookies during flights. According to Simple Flying, the airline serves about 85 million cookies a year. If you’ve taken to the skies in the last decade, you’ve probably had a…