Columns

Revisiting the Plans I Had Before the World Went Mad

Last January, my visit to the U.S. turned into one of my longest hospital stays since my lupus diagnosis. I associate a lot of fear with that stay. Once it was under my belt, many changes lay ahead. For the first time in over a year, I was optimistic.

Your Opinions and Advice Are Now Considered Garbage

I research every medication I am prescribed. I have doctors explain my test results as if I am 6 years old. I ask questions and when doctors don’t answer in a way I fully understand, I rephrase and research. I weigh the benefits and risks before deciding to take…

How Lupus Was the Catalyst to Authenticity in My Life

At one point or another, everyone realizes that pleasing the masses is impossible. With that realization comes freedom. The freedom to finally live the way you have always wanted. The freedom to stop caring about what anyone else might think of you. Most people reach the “I don’t…

These Feelings Can’t Be Real

There are days when my life feels like a Milli Vanilli song; it’s being faked, but it’s known for the part that is fake! Unfortunately, lupus is very real. There has been a lot of rain lately, and as I move through my home I realize I am hurting…

How I’m Reclaiming the Anniversary of My Diagnosis

As of May 22, 2020, I have lived with my lupus diagnosis for four years. I have commemorated the past three anniversaries on their exact date with a photo and paragraph. Half of me has always loved celebrating on the actual date of my anniversary. That’s partly because in…

Why I Don’t Want to Live Forever

I have thought about death and mortality more than the average 20-something. In fact, I love nothing more than debating the philosophy around it. To me, death isn’t a cause for anxiety or fear; it is a fact of life. A fact I have been at peace with for some…

I Am Battling Lupus but I Am Not Fragile

I am slight in build. I am a woman who is bald. I am battling lupus. I am not fragile. If you were to stop and look at me, I might look as if I could break. At the start of 2020, I weighed 99 pounds. I’m happy to report…