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Holiday party planning for those with chronic illness

It’s the holiday season again, and while it’s my favorite time of year, it’s also the season that stresses me out the most. If you have lived with chronic illness for a while, as I have, you’re likely aware that it doesn’t mix well with stress. One…

When lupus prevents traveling, I have a ‘Bismott Moment’

Since 1986, Delta airlines has consistently served Biscoff cookies during flights. According to Simple Flying, the airline serves about 85 million cookies a year. If you’ve taken to the skies in the last decade, you’ve probably had a pack or two (or four) of these oblong, cinnamon-ginger shortbread…

My mantra for a flare is ‘It’s OK not to be OK’

If you have a chronic illness, I imagine you’ve experienced a moment of guilt at some point because you weren’t able to get out of bed due to a flare or other ongoing symptoms. I even bet you’ve felt that way more than once. I’m more accepting today…

In a crisis, I follow the advice from my Lupus Training 101

“You know, lupus thrives in extremes,” a rheumatologist told me. His tone was bland and matter-of-fact. “No, I don’t know much about lupus besides its misery,” I responded. “For one thing, your body will see elation and stress with the same intensity, and that may trigger flares.

Signing off, with tears in my eyes and joy in my heart

For me, writing has always been equal parts advocacy and therapy. I wanted to help others but I also needed a way to deal with the vortex of emotions swirling inside of me. Early on, I wrote regularly about all the struggle, pain, and heartache associated with…