Columns

I’m in Lupus Remission but I Feel Incomplete

The past few months have been a disaster. Despite being a bona fide joy junkie, I’ve experienced new physical symptoms that have drained me mentally, physically, and emotionally. I rarely feel very low for a long period, but recently I was having such a difficult time that my…

Lupus Is My Third Child

When children are young, they love to drive you up the wall and seem to take particular pride in picking at one another. They put on their best-worst behavior for you on the morning your eyeliner is crooked, you’ve only rinsed out half of the shampoo, and you’re…

Thoughts of Dating

I go back and forth on the issue of dating. Sometimes I think it’s because even before I got sick, I was considered “intimidating” to many men. I have been told this for most of my adult life: They meet me, they find me attractive, we start talking,…

A Reflection on My Journey with Prednisolone

I remember the first time I was given the corticosteroid prednisolone to treat lupus. Within days, it became clear that the medication was working, but I’d already started to hate it. In retrospect, that was a foretelling sign of the long-term love-hate relationship we would share. The…

The Cost of Using Immunosuppressants

I remember when catching a cold felt only irritating; when it meant a couple of days off school with Mum forcing me to down foul cherry-flavored cough syrup and maybe some chicken noodle soup. Those were the easy days of cold and flu. I wish that would still be the case.

I Laugh to Keep from Crying

We’ve all heard the saying: “I laugh to keep from crying.” Sometimes that’s the way it is with lupus. There are always new changes, symptoms, and hospital stays — more coping, coping, and coping. Then there’s still real life, like family, work, and bills. At times, it gets…

There’s No Cure, but There Is Relief for Me

Heartburn, acid reflux, indigestion … I feel like a walking Pepto-Bismol commercial. It seems that even water has the ability to cause heartburn — and here I expected it to put that fire out. I have been a sometimes-vegetarian for years, but recently I decided to ditch anything…

Am I Optimistic or Am I in Denial?

I am on a journey. I’m chasing remission from lupus by using a plant-based lifestyle. I’m keeping a record of how I feel, my symptoms, and the food I eat. I have been a vegetarian for a few years. However, I’ve fallen off the wagon on occasion:…