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Helpless, Hopeless — and Refusing to Give Up

I believe there is a time and place for everything, but to be honest, sometimes battling lupus leaves me wondering what time and place I fit into. Many of us with lupus are young women who no longer can work outside of the home. For those of…

Lupus Cannot Have My Self-Esteem

I have been single for many years. Initially, I was enjoying a few years of my kids being home before they would take off to college, and then on to lives as adults. I transitioned to a new job in a new city, and life…

The Realities of Disability and Lupus

At the age of 28, I was diagnosed with a severe case of lupus. In addition to the renal effects, my lupus began to attack my central nervous system, including my brain. My cognitive function, memory, and mood were greatly affected and made it difficult to do my normal job.

Rebel with a Cause

While the “rebellious phase” more often than not takes place in most people’s teenage years, I made it from the age of 13 all the way into my 20s without feeling the need to channel my inner rebel. Although I once believed that I just didn’t have…

The Benefits Of Support Groups

Dealing with an illness isn’t easy, and going through it alone can make things more difficult. Support is one of the most important aspects of dealing with any disease, including lupus. While family and friends can be a crucial part of your support system, it helps to seek advice from…

Rethinking What I Value Most About Myself

When I was diagnosed with lupus, I hadn’t cut my hair for more than five years. It had grown so long that I almost could sit on it, and it was one of the things I truly loved most about my appearance. But six months into treatment,…

What We Eat Is Food for Thought

We get hungry, we eat. That’s what I thought of food before getting lupus. I know that sounds pretty basic, but that’s how it goes. We may complicate things by asking what we…

‘Vacation, All I Ever Wanted, Vacation, Had to Get Away’

This past weekend, I went on vacation for the first time since I started working full time a year-and-a-half ago. I have used all of my paid time off for doctors’ appointments, which has been very frustrating, especially when I hear about all of the wonderful things that my similarly…