Columns

Losing It All, but Fighting Back

I opened my eyes this morning and knew it would be a great day to write. Why? Because with what I was feeling, I would be in bed all day. Pretty much everything hurts except my fluttering eyelids. Yep, no pain there. Battling lupus is like fighting the…

Trying a New Way

I think that because those of us battling lupus don’t look sick, people have no idea how much the disease affects every aspect of our lives. I know I’ve shared my feelings on this subject at various times in this column. Unfortunately, when your entire life is disrupted, it’s…

My Greatest Fear Is that My Parents Will Have to Lay Me to Rest

Death isn’t an abstract concept to me. I’m sick, and regardless of the fact that my sickness is outrageously unpredictable, my eventual descent toward passing will likely be pretty linear. I’ve learned to accept that deteriorating health will be par for the course for someone like me,…

In Sickness and in Health: Marriage and Chronic Illness

Few couples hearing the term “in sickness and in health” at their wedding have thoughts of chronic illness enter their mind. But the reality is, with almost half of the American population dealing with some type of chronic illness, this should be something all couples consider. Relationships, while…

Remission Doesn’t Mean Cure — Chronic Illness Is for Life

The word “remission” doesn’t mean what most people think it does. When most people use the word remission, they do so in relation to cancer and assume that it’s easily interchangeable with “cure.” But it’s not — in fact, it’s far from it! Remission only refers to an…

What Are Your Goals?

I have been asked what my goals are twice in the past two months. At one time, I would have told you that I was an ambitious overachiever. Now, I strive to get out of bed before 9 a.m. The first time it was on a questionnaire at the…

I Have Reasons for My Physical Challenges, Not Excuses

Living in this era of booming health and fitness, my Instagram and Facebook feeds are full of workout videos, fitspo selfies, and motivational posts. To me, physical exercise is just another form of medicine. When I spend money on exercise, I view it as an investment in my…

Lupus, Grief, and Losing a Loved One

Dealing with a chronic illness each day can be frustrating and overwhelming, so how do we factor in grief and the grieving process when someone close to us passes away? How do we actively mourn the passing of a loved one without causing a flare-up? To be honest,…