For those of us battling lupus, chronic fatigue is often the reason we cancel social engagements at the last minute. Some friends and family members don’t understand that our fatigue is not a normal type of tired. Sleeping for days on end is not unusual with lupus, and we…
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Last week I went in for a day surgery to have a cyst removed from my left ear lobe. Unfortunately for me, the scar tissue trauma known as a “keloid” and my left ear lobe appear to have become staunch friends. This is the second time in less than a…
When I recently was admitted to the hospital, I had no idea it would be for two weeks. But after hearing the list of reasons for my admission, I understood that it would take a while. I had planned to be in the States for a routine four-day visit,…
It’s funny how the mind processes things. When I think about my hospital admission prior to my 2016 lupus diagnosis, I automatically identify it as a traumatic experience. But I don’t realize just how traumatic it was until I find myself back in the same hospital, immersed in a…
Sometimes, I forget that I have lupus. Is that weird? I have spent so much time pushing my body and telling myself that many of the things I can no longer do are because I am not trying hard enough. Then I landed in the hospital followed by a…
It’s been an interesting couple of months. I have learned, endured, and accepted (I hope) a lot. I am always doing checks and balances with my mental health, working to find joy on difficult days, being grateful for another day, and looking for opportunity amid my adversity. Following my…
I was lulled into thinking that I could give American healthcare another chance. I had a 14-day stay at the James A. Haley Veterans’ Hospital in Tampa, Florida, where I was treated like a VIP. I heard about the culture shift throughout the hospital, and I felt it through…
No matter what happens, the world keeps turning. It doesn’t stop for moments of happiness or moments of heartache. Sometimes I wish it would come to a halt. Not for too long. Just to give me enough time to wipe my tears and take that deep breath necessary to pull…
People tease about how there are no manuals for rearing kids. Well, there is no manual on how to navigate an illness like lupus, either. Everyone is simply winging it and hoping they are making the right decisions. It seems lupus is always delivering something new, with no instructions…
Lupus is my greatest motivator and most consistent catalyst for change. Its ability to uproot my life at any time has the potential to be devastating. But with the knowledge that all aspects of my life are temporary comes the courage to live in the moment. I’ve had four trips…
Recent Posts
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- How to mitigate the sense of failure that can arise during a lupus flare
- What to remember if you’re dating with a chronic illness