I saw a statistic that said that only 31 percent of adults with lupus are working full time. The rest of us are just battling it out. If you are like me, you applied for disability, but with the backlog or whatever reasons they have for not getting…
Battling lupus stinks. It takes so much out of you. When I was diagnosed, I was selling homes, I had a full social life, and I was a big ball of energy. I would cook, clean, entertain, and work. As lupus settled into my body, I have…
I found out the name of the thing that was torturing me in February 2016. I was told I was suffering from lupus. At that time, I decided that I had received a death sentence. It was torturing me in so many ways. I shared with my mom…
I believe there is a time and place for everything, but to be honest, sometimes battling lupus leaves me wondering what time and place I fit into. Many of us with lupus are young women who no longer can work outside of the home. For those of…
There are many things that can cause a lupus flare, but for me, stress is my biggest trigger. Every time I have ended up in the hospital, it was during a time of very…
I have been single for many years. Initially, I was enjoying a few years of my kids being home before they would take off to college, and then on to lives as adults. I transitioned to a new job in a new city, and life…
We get hungry, we eat. That’s what I thought of food before getting lupus. I know that sounds pretty basic, but that’s how it goes. We may complicate things by asking what we…
When I think of cold feet and a warm heart, what comes to mind is a caring relationship that carries a little fear of commitment. If that is what you thought of, too, sorry to take you down a different path. This one is literally one of cold feet and a…
Stress is a trigger. It is one of the first things you learn as a lupus warrior. The unfortunate thing is that life is filled with stress. No matter what you do, there is going to be something that is going to create a certain level of…
Compassion, empathy, and sympathy: These are all things we wish the world had more of. Understanding is also something we seem to ask for, but I humbly submit that of all the things on the list, this is the most difficult to give and to get. To truly…