When my treatment for lupus began, I was prescribed about 10 types of medications. Of those 10, only one made its presence known within the first month. But the thing was, it didn’t just announce itself; it screamed “PREDNISOLONE!”, so that I had no choice but to…
The Girl Who Cried Wolf - A Column by Kristi Page
Being calm doesn’t come naturally to me. With a mind that’s constantly racing, there’s rarely a moment when I’m not deep in thought about one thing or another. My life is chaotic. From a need to overfill my waking hours with the things I love most to the…
No one grows up dreaming of falling in love with somebody who’s sick, and for good reason. Chronic illnesses are tiresome and unfair; they’re endless mountains of hard work and uncertainty followed by the type of surprise add-ons no one wants. And if you’re lucky enough to…
Two types of evil have existed throughout my life: lupus and guilt. They both have black souls and hold the power to destroy me in different ways. I regularly make deals with each of them, but nothing is ever an easy or uncomplicated choice; to make a deal…
Immunosupressants are simultaneously the very best and worst things for my health. These magic medications have played a large part in making sure lupus has been so unsuccessful in its mission to take hold of my kidneys. But they also caused me to be sick for a…
My later years of high school were all about goal-setting. What did I want in the next six months? What about in the long-term? As an intensely goal-driven individual, I’d become accustomed to moving from one goal to the next with ease. With lupus, goal-setting is not quite…
There’s something about being diagnosed with a chronic illness at a young age that the rest of the world can’t help but see as tragic. Diagnosed with lupus at age 20, I know all about what that’s like. It’s not that someone older is any less unfortunate…
Last week, Selena Gomez posted a photo on Instagram about her recent kidney transplant. Her openness about both her condition and the treatment has undoubtedly been a much-needed catalyst to greater awareness and recognition of lupus, especially since her latest surgery. As part of our ongoing ritual…
A recent post on Facebook depicted a mother’s overwhelming love for the midwives and nurses who helped her through her very first C-section. Attached was a photo of a truly vulnerable moment between a nurse and the new mum. The scene shows the midwife tending to…
Though there is no cure for lupus, the word “remission” tends to bring a lot of hope and comfort to those around me. While remission is the goal I have been hoping to achieve for the past year-and-a-half, I have to admit that its prospect doesn’t bring…
Recent Posts
- To my ‘forever nurse,’ who finally gave me my diagnosis of lupus
- New analyses show Benlysta may aid flare control, kidney health
- Can art therapy help lupus patients improve cognitive function?
- With chronic illness, checking in means asking, ‘How ya really doin’?’
- FDA approves Gazyva as lupus nephritis treatment