The Girl Who Cried Wolf - A Column by Kristi Page

happiness, love, Extraordinary doctors

“Kristi” is a surfer, barista, and university student studying for arts and science degrees in philosophy and mathematical modeling. Living on the picturesque Bellarine Peninsula on the southeast coast of Australia, she’s deeply passionate about salt water and amazing coffee — even though she’s not allowed to drink it. Above all else, she loves traveling the world! Diagnosed with stage IV lupus nephritis at 20, she’s determined to not be defined by her autoimmune condition. Using writing as a medium for self-expression, she hopes to share her life and journey to both raise awareness and support others in similar situations. A big believer in the concept of dialectics, she loves sharing and hearing unorthodox, sometimes controversial, views. She’s quirky by choice, inquisitive by nature, and smiling always!

A Life of Depending on Doctors, Thanks to Lupus

Dependency is part of the human experience. A large majority of the early years of our lives are spent relying on parents and guardians to teach us the ins and outs of life. If you’re lucky enough to make it to old age, you’ll once again find yourself…

Questioning Whether I Am to Blame

Lupus is a big, black question mark in every sense. Of course, there’s the fact that there’s no cure, but even more frustrating is that we’re left without a cause, either. While the prospect of living with a chronic illness for the rest of your life is definitely…

Tips for a Traveling Lupie

At 16, I stepped off Australian soil for the very first time, only to fall in love with traveling the world. In my last six revolutions around the sun, I have endeavored to explore this wonderful planet we call home, wherever my bank balance would allow me, whenever…

Suppressing One Monster by Exposing Myself to Others

In the midst of a harsh Australian summer, for the very first time this year — but definitely not the last — I’m sick. The silly thing is that I’m always so hopeful when I see one of my colleagues come into work coughing and spluttering. “Maybe I…

Redefining ‘Normal’

There are two distinct types of normal that exist in my life with lupus, and their distinctions are incredibly important. There is the type of normal that accompanied learning to live with lupus, which I would refer to as “lupus normal.” This includes fatigue, brain fog, and endless lifestyle…

Facing My Mortality

Being diagnosed with a chronic illness means being opened up to an endless string of existential realizations. One of these is that your new state of being is not temporary, but likely will last for as long you live. It is…

Social Media Images Can Lead to the Wrong Assumptions

Last June, I spent a month on the other side of the world holidaying in the European sun with my sister. In true millennial fashion, I couldn’t help but fill my friends’ Instagram feeds with a seemingly endless stream of photos of my adventures in foreign lands. And…

What It’s Like to Win the ‘Lupus Lottery’

Through the time that surrounds the day that confirmed my lupus diagnosis, there is one thing that stands out clearly. As my nephrologist explained what lupus was and the different treatment options that were available, he introduced a phrase that will stay with me forever. He stated…

If I Wanted Your Advice, I’d Ask for It

The thing about being so open about my lupus on social media is that people often attempt to force their advice on me. While I understand that, for the most part, it’s incredibly well-intended, please understand that although I’m speaking out I’m actually not asking for your opinion…

Progress Is Made One Step at a Time

I’ve gone through countless evolutions in the past 18 months. One year ago, I felt physically overcome by weakness. Just getting up in the morning was a feat in itself, let alone tackling the day in front of me. But I made a choice, a choice that has…