Columns

My Family and the Stages of Grief

When you go through a major loss of someone close to you, well-documented stages of grief occur. These stages happen with death, divorce, and a major illness. I never realized that a diagnosis could cause grief. For me, it was not only a new revelation, but…

Lupus and the Beauty of Hindsight

Though it took me some time to realize, there were certain things that I lost in the instant I was diagnosed with lupus. The saying goes that we never know what we have until it’s gone, and for me that couldn’t be truer. There’s a whole other…

Time for New Priorities, So Vanity, Step Aside

Once upon a time, I had two rooms full of shoes. One room had high heels, the other had wedges. I rarely wore anything that was closer to the ground than four inches. I was, after all, the Hurricane in Heels, so flats were not in my vocabulary.

Learning, Hard Way, Not to Quickly Judge Others

When I was diagnosed with lupus I lived alone, and I still live alone. Because of this I still need to do things like get groceries, even if I have just been released from the hospital with inflamed organs. Some of us “look great,” despite the handicapped placards…

How I Explain Lupus Fatigue: Imagine Never-ending Jet Lag

If you’ve traveled far from home, it’s likely you’ve felt jet lag. There’s nothing quite like the euphoria of knowing you’ve got nothing but work-free, relaxing days ahead of you. But there’s also no other phenomenon like jet lag ― unless you live with lupus fatigue. When I…

I Know You Mean Well, But …

“Have you tried swimming?” “Maybe you should take an Omega-3 supplement.” “Walking more will help you build your stamina.” As lupus patients battling everything from muscle fatigue to a total lack of energy, we have heard as much as we want of these type of comments from people…