I find it funny the things that people choose to say and the words they withhold from you. Those of us living with a chronic illness such as lupus often hear, “You don’t look sick.” What we wish they meant was, “You look really good in spite…
Last week I caught my second cold for the year and followed it up with a sinus infection for good measure. Unfortunately, it’s only to be expected when the beautiful Australian summer finally gives way to autumn’s cool change, especially when you’ve heavily and deliberately suppressed…
I’ve seen many movies in which the characters are paid or forced to lose. A conflict of conscience always arises, even when their actions are to save a loved one or the money is to salvage the family home, farm, or whatever. A true fighter doesn’t really know…
Mid-conversation, I’m often asked questions that lead to me revealing information the other person isn’t ready to hear about. It involves an unsettling, controversial word. Actually, it’s not just a simple word, but a name: lupus. And then comes an all-important question I hear time and time again. What…
I grew up in inner city Chicago, I am a Desert Storm veteran, I reared two amazing kids all alone, and I navigated the competitive waters of real estate for almost 20 years. Now, leaving my home is a challenge. Years ago, I saw a movie about an …
I’m a confessed hopeless romantic. Blame my parents! With 27 years of marriage under their belts and a grand total of 37 years together, I’ve spent my entire life watching a love story unfold. But just like any long-term relationship, their real-life fairy tale hasn’t always been smooth…
When lupus decided to change my life, I was loving the one I was living. I think about people who hate their jobs, are barely getting by, and have no support from family and friends. I was not that person. I chose my career, and in the…
I’m an addict. Before you get the wrong idea, I should explain. My addiction isn’t to any type of illicit or prescription drug, it’s not to alcohol, and I don’t even crave caffeine. No, my vice is something else, something harder to attain. I’m addicted to control.
I don’t watch much television. I don’t know the names or faces of many celebrities. However, when I learn that a famous person is a lupus warrior, I put them on my radar. I want to support them because I know how hard I fight to have a…
Anxiety and depression seem to be tag-alongs of lupus. Before my diagnosis, I would feel sad sometimes, but I wasn’t depressed. I would allow myself a three-day pity party, before saying, “OK, enough; time for solutions.” With lupus, there are no solutions. Life as I knew it is…