Dependency is part of the human experience. A large majority of the early years of our lives are spent relying on parents and guardians to teach us the ins and outs of life. If you’re lucky enough to make it to old age, you’ll once again find yourself…
Lupus is a big, black question mark in every sense. Of course, there’s the fact that there’s no cure, but even more frustrating is that we’re left without a cause, either. While the prospect of living with a chronic illness for the rest of your life is definitely…
At 16, I stepped off Australian soil for the very first time, only to fall in love with traveling the world. In my last six revolutions around the sun, I have endeavored to explore this wonderful planet we call home, wherever my bank balance would allow me, whenever…
In the midst of a harsh Australian summer, for the very first time this year — but definitely not the last — I’m sick. The silly thing is that I’m always so hopeful when I see one of my colleagues come into work coughing and spluttering. “Maybe I…
There are two distinct types of normal that exist in my life with lupus, and their distinctions are incredibly important. There is the type of normal that accompanied learning to live with lupus, which I would refer to as “lupus normal.” This includes fatigue, brain fog, and endless lifestyle…
Being diagnosed with a chronic illness means being opened up to an endless string of existential realizations. One of these is that your new state of being is not temporary, but likely will last for as long you live. It is…
Last June, I spent a month on the other side of the world holidaying in the European sun with my sister. In true millennial fashion, I couldn’t help but fill my friends’ Instagram feeds with a seemingly endless stream of photos of my adventures in foreign lands. And…
Through the time that surrounds the day that confirmed my lupus diagnosis, there is one thing that stands out clearly. As my nephrologist explained what lupus was and the different treatment options that were available, he introduced a phrase that will stay with me forever. He stated…
The thing about being so open about my lupus on social media is that people often attempt to force their advice on me. While I understand that, for the most part, it’s incredibly well-intended, please understand that although I’m speaking out I’m actually not asking for your opinion…
I’ve gone through countless evolutions in the past 18 months. One year ago, I felt physically overcome by weakness. Just getting up in the morning was a feat in itself, let alone tackling the day in front of me. But I made a choice, a choice that has…