Most people take for granted getting ready for each day. It takes a lot of energy to get up in the morning, shower, get dressed, do your hair, and put on makeup. Recently I have been having issues with my arms. I must assist one hand in…
When you get the news that your health will forever be in the toilet, I can assure you that you have to deal with more than just the diagnosis. You find yourself working emotionally, spiritually and physically within new confines. At any given time in our lives,…
You knew something wasn’t right, but it seems to have taken doctors forever to render a diagnosis. When they did, it was not what any of us wanted to hear. You have an incurable disease. It is going to occasionally grab you by the ankle, flip you…
Lupus stinks! It consumes your life. It takes over so many aspects of your life. I can tell you that when I initially got my diagnosis, I really thought I could deal with it on my own. How bad could it be to deal with being sick?…
When you go through a major loss of someone close to you, well-documented stages of grief occur. These stages happen with death, divorce, and a major illness. I never realized that a diagnosis could cause grief. For me, it was not only a new revelation, but…
Once upon a time, I had two rooms full of shoes. One room had high heels, the other had wedges. I rarely wore anything that was closer to the ground than four inches. I was, after all, the Hurricane in Heels, so flats were not in my vocabulary.
It’s funny the difference a word can make in the way you deal with things. I moved abroad, changed the way I eat, and research all I can, yet I was never one to meditate. I now meditate and pray. I do all of these things…
When I was diagnosed with lupus I lived alone, and I still live alone. Because of this I still need to do things like get groceries, even if I have just been released from the hospital with inflamed organs. Some of us “look great,” despite the handicapped placards…
“Have you tried swimming?” “Maybe you should take an Omega-3 supplement.” “Walking more will help you build your stamina.” As lupus patients battling everything from muscle fatigue to a total lack of energy, we have heard as much as we want of these type of comments from people…
We all have our battles when it comes to how we decide to try and tackle lupus after our diagnosis. How we choose to fight it is also quite personal. For me, I…