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What does sick look like? I often have wondered why people think they can tell just by looking at you what you are experiencing. Then they will try to tell you what you are experiencing. How many times have you expressed not feeling well, only to have someone say,…

When I first started getting sick, the fatigue was overwhelming and I didn’t move very far off my sofa or bed. Some days just sitting up, or getting out of bed, felt like an accomplishment. I often push myself a little harder than I should, but before I…

Lupus was the ultimate wrench in the works. There isn’t one aspect of my life that went untouched; nothing was safe or left unchanged. I have to admit that in most cases it’s been a positive thing. However, when it comes to love, I can’t bring myself…

I sometimes think the old-school way is the best-school way. I want the technology, research and all that comes with making progress with lupus treatments. However, when you are dealing with medical professionals, a little old-school goes a long way. Doctors with great bedside manners seem to be…

There was a period of time, not long after my diagnosis, when I felt as if I had truly lost everything. I felt overcome by my condition, as if it had sucked all the goodness out of every aspect of my life. Today, I find myself on…

I grew up in a pretty tough neighborhood and was reared by a single mom. She was tough, and she wasn’t overly affectionate. We never heard “I love you,” but we knew she did anyway. She would fight for us with fierceness. Sometimes — a time or…

Can I just tell you that having lupus can really take it out of you? Mentally, physically, emotionally and spiritually. Over the past few weeks I have run the gamut. There is not just an emotional toll for me. I…

When it came to my first six months with lupus, it felt like I took so many losses. My diet, my energy, my face, my body shape, the list just kept growing. I felt like I never got to take anything back. I never got to have a…

I write this in a state of disbelief and heartbroken shock. Not long ago I found out about the passing of someone whose presence merely graced my life, yet left a lasting imprint. I’d love to dedicate this column not only to one wonderful and strong woman,…

I recently was released from the hospital with more narcotics than a drug cartel, or at least that is what it felt like. Each one comes with its own issues and side effects. Instructions vary: Take after dinner,…