You knew something wasn’t right, but it seems to have taken doctors forever to render a diagnosis. When they did, it was not what any of us wanted to hear. You have an incurable disease. It is going to occasionally grab you by the ankle, flip you…
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As humans we long to have someone relate to what we’re going through, to be accepted and understood. For a very long time I didn’t have to work very hard to achieve this feeling. Nowadays, it’s something I want desperately, but I know that to have it…
Lupus stinks! It consumes your life. It takes over so many aspects of your life. I can tell you that when I initially got my diagnosis, I really thought I could deal with it on my own. How bad could it be to deal with being sick?…
My diagnosis of lupus was a lot of things. It was a shock to the entire system. It was an introduction to a new world that was completely unknown to me. It was the catalyst to the greatest internal struggle I’ve ever experienced. But more than anything else,…
When you go through a major loss of someone close to you, well-documented stages of grief occur. These stages happen with death, divorce, and a major illness. I never realized that a diagnosis could cause grief. For me, it was not only a new revelation, but…
Though it took me some time to realize, there were certain things that I lost in the instant I was diagnosed with lupus. The saying goes that we never know what we have until it’s gone, and for me that couldn’t be truer. There’s a whole other…
Once upon a time, I had two rooms full of shoes. One room had high heels, the other had wedges. I rarely wore anything that was closer to the ground than four inches. I was, after all, the Hurricane in Heels, so flats were not in my vocabulary.
With three daughters to raise, my parents always worked hard to promote positive body and self-images within our family unit. Ever since I can remember, my mum has tirelessly emphasized that we should accept our bodies as we are, ingraining within us a sense of confidence and…
It’s funny the difference a word can make in the way you deal with things. I moved abroad, changed the way I eat, and research all I can, yet I was never one to meditate. I now meditate and pray. I do all of these things…
When I was diagnosed with lupus I lived alone, and I still live alone. Because of this I still need to do things like get groceries, even if I have just been released from the hospital with inflamed organs. Some of us “look great,” despite the handicapped placards…
Recent Posts
- To my ‘forever nurse,’ who finally gave me my diagnosis of lupus
- New analyses show Benlysta may aid flare control, kidney health
- Can art therapy help lupus patients improve cognitive function?
- With chronic illness, checking in means asking, ‘How ya really doin’?’
- FDA approves Gazyva as lupus nephritis treatment