I get pretty excited when the new year is upon us, as it offers a clean slate and an opportunity to start fresh. The beginning of a new year is an empty vessel we can fill with new desires and goals. For those of us with chronic illness, our…
Lupus is an ugly diagnosis. It is one that comes with an unpredictable future. Some people get the medications and they are OK, others have a revolving door at the hospital, and some succumb. You just have no idea if it will affect you in ways that will…
So, I signed up for Match.com. Why? Because I’m single and it’s presently what some call “cuffing season.” This is the time when people who spent the summer BBQ hopping and frolicking in fields of flings lock themselves down to one person. Some suggest this is in order to stay…
There are two distinct types of normal that exist in my life with lupus, and their distinctions are incredibly important. There is the type of normal that accompanied learning to live with lupus, which I would refer to as “lupus normal.” This includes fatigue, brain fog, and endless lifestyle…
Fa la la la la ―I can’t believe the holidays are here again and another year has come and gone. Fall and winter are my favorite seasons, not only because of the cool crisp air, snowfall, holiday decorations and hot chocolate, but also because we can connect with friends…
I’ve felt, for the first time, what many would call writer’s block. I have had a conflict going on with the two most prevalent things in my life: the joy I push for and the pain I wish would go away. Lupus has brought a lot of things…
Being diagnosed with a chronic illness means being opened up to an endless string of existential realizations. One of these is that your new state of being is not temporary, but likely will last for as long you live. It is…
It was my umpteenth time in the ER for complications with lupus. My nurse was from the Caribbean (like many in this hospital in Flatbush, Brooklyn, New York), and he had a thick Jamaican accent. He came in to do a vitals check and asked if I’m chronically…
I knew I was supposed to be doing something important, but for the life of me, I couldn’t remember what it was. For many of us who struggle with brain fog, this is a common scenario. But brain fog can go beyond just forgetting what you were supposed…
On Jan. 1, 2016, I went to Daytona Beach, Florida, reconciled my life, went home, wrote my last wishes and had them legalized, then called my family to tell them where to find the documents. It was the year of the tombstone. That’s what I jokingly started calling…