I think that because those of us battling lupus don’t look sick, people have no idea how much the disease affects every aspect of our lives. I know I’ve shared my feelings on this subject at various times in this column. Unfortunately, when your entire life is disrupted, it’s…
Columns
Death isn’t an abstract concept to me. I’m sick, and regardless of the fact that my sickness is outrageously unpredictable, my eventual descent toward passing will likely be pretty linear. I’ve learned to accept that deteriorating health will be par for the course for someone like me,…
Few couples hearing the term “in sickness and in health” at their wedding have thoughts of chronic illness enter their mind. But the reality is, with almost half of the American population dealing with some type of chronic illness, this should be something all couples consider. Relationships, while…
The word “remission” doesn’t mean what most people think it does. When most people use the word remission, they do so in relation to cancer and assume that it’s easily interchangeable with “cure.” But it’s not — in fact, it’s far from it! Remission only refers to an…
I have been asked what my goals are twice in the past two months. At one time, I would have told you that I was an ambitious overachiever. Now, I strive to get out of bed before 9 a.m. The first time it was on a questionnaire at the…
Last Friday was a good day. Actually, it was a great day. Finishing my morning shift at work, I opened my phone to find a notification that brought me a lot of happiness. It wasn’t anything earth-shattering; in fact, it would’ve been meaningless to anyone else. It was just…
I returned to the United States from Southeast Asia in mid-May. I came back to visit my family, and I had another intention in mind. As much as I dislike the U.S. healthcare system, I am a veteran, and I am entitled to certain benefits. As some of…
Living in this era of booming health and fitness, my Instagram and Facebook feeds are full of workout videos, fitspo selfies, and motivational posts. To me, physical exercise is just another form of medicine. When I spend money on exercise, I view it as an investment in my…
Dealing with a chronic illness each day can be frustrating and overwhelming, so how do we factor in grief and the grieving process when someone close to us passes away? How do we actively mourn the passing of a loved one without causing a flare-up? To be honest,…
Lupus sucks! There, I’ve said it. I have a feeling that anyone battling this disease, or anyone watching a loved one do so, will agree. If you believe in the Bible, lupus to me is the true definition of the devil. It comes to steal, kill, and destroy. In…
Recent Posts
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- AMETHYST trial of litifilimab making “strong progress,” Biogen says
- What reasonable workplace accommodations actually look like
- How to mitigate the sense of failure that can arise during a lupus flare