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Pushing Through the Pain

Recently, I had a very ugly flare that caused me a lot of pain. Every time I have a flare, it really sets me back — not just physically, but mentally as well. I have an increasingly harder time recovering after each flare. For so many of us,…

Not Quite the Big ‘R’, But Close

Thursday of last week was a big day for me. Actually, scratch that. It was a huge day. A milestone. That Thursday, every moment of pain and struggle over the last two years finally amounted to something wonderful. In revealing the results of a recent kidney biopsy, my…

The Chronically Ill Couple

My boyfriend, Jordan, is my best friend and my rock. We’ve built our relationship’s foundation on a deep-seated love for food and the understanding that, in so very many ways, our realities with young adulthood are both uncommon and generally misunderstood. You see, Jordan doesn’t just sympathize with…

With Lupus, a Power Nap Helps You to Maximize Your Day

What others call “overdoing it” I call “maximizing the hours of the day.” One example is this past weekend, for which my Saturday was scheduled to go like this: 7:30 a.m. – Walk for Lupus in Manhattan 9:30 a.m. – Perform at a conference at Fordham University…

The 10-year Plan

Barely a week after arriving in Thailand, I was hospitalized. Doctors told me that my platelet count was so low that they were afraid my brain would spontaneously start bleeding, among other things. I am so foolishly optimistic that I figured it would right itself and I would…

Walking the Line Between Overreacting and Underreacting

Living with a chronic illness is difficult, all the more so because most of my symptoms are invisible and largely undetectable by everyone else. My family has always lived by a “tough love” philosophy regarding health: Unless it’s something genuinely debilitating, you put on your “big-girl pants” and…

Do You Have Someone to Talk To?

Five years ago, when I realized my mother would pass because of lung cancer spreading throughout her body, one of the first things I did was look for a therapist. My mother was the first person truly close to me to pass away, and I knew it would…