I opened my eyes this morning and knew it would be a great day to write. Why? Because with what I was feeling, I would be in bed all day. Pretty much everything hurts except my fluttering eyelids. Yep, no pain there. Battling lupus is like fighting the…
I think that because those of us battling lupus don’t look sick, people have no idea how much the disease affects every aspect of our lives. I know I’ve shared my feelings on this subject at various times in this column. Unfortunately, when your entire life is disrupted, it’s…
I have been asked what my goals are twice in the past two months. At one time, I would have told you that I was an ambitious overachiever. Now, I strive to get out of bed before 9 a.m. The first time it was on a questionnaire at the…
I returned to the United States from Southeast Asia in mid-May. I came back to visit my family, and I had another intention in mind. As much as I dislike the U.S. healthcare system, I am a veteran, and I am entitled to certain benefits. As some of…
Lupus sucks! There, I’ve said it. I have a feeling that anyone battling this disease, or anyone watching a loved one do so, will agree. If you believe in the Bible, lupus to me is the true definition of the devil. It comes to steal, kill, and destroy. In…
To experience anger is to experience stress. Stress is a lupus trigger, and while we all have stress in some form, we don’t all have to have it all the time. We can learn to limit the things that cause stress or anger. I have decreased…
When you are battling an illness without a “look,” it’s pretty difficult to get people to understand that despite not looking sick, you really are. I share awareness. People tell me I am strong. However, even the strong ones need a good support system. Thankfully, I have…
Going to a hated job is something so many people complain about. They don’t like their co-workers, and if you could give them a two-hour lunch and a nap in the middle of the day, they’d be in line to sign up. Once upon a time, I would…
Earlier this year, I shared in a column that I am chasing remission, and that lupus has caused a shift in my spiritual beliefs. Today I find myself revisiting both of these subjects. Have you ever had an enemy who said you couldn’t do something, and it made…
If you’ve ever partied like a rockstar, then you’ll know that while the night feels like it’s worth it, the next morning leaves you vowing never to party like that again. The night of a party is how it feels to have a high-energy, low-pain day with lupus.