“I wish there was something I could do to help.” This is a common response when I tell someone about my chronic illness. Sharing with someone that an external force is hurting you prompts a wave of emotion and action. They believe they can help, and more than that,…
When someone expresses their sympathy about my life with lupus, a typical response just rolls off my tongue. “It could be worse.” It’s true. Life with lupus could be many magnitudes worse than it is for me right now. Crippling arthritis, unbearable chronic pain, migraines, brain fog, and recurring mental…
Many things about my relationship with my partner, Jordan, are unique. As two 20-somethings, each living with our own chronic illness, our experiences are a world away from those of our peers. In most “normal” relationships that involve chronic illness, there is a caregiver and a care receiver. In…
Once upon a time, I was a big extrovert. I was out so frequently, having dinner with friends, hosting events for my fashion blog, and of course, I had a career selling real estate. That job took me to a ton of networking events, conferences, and seminars. To…