I am visiting the United States after being away for two years. Quite a few people have reached out, wanting to spend some time with me. The first two weeks here in the States, I had an ugly flare that left me in pain and in bed. I…
I’ve felt my fatigue ebb and flow since the day of my diagnosis. I go through patches of good, bad, and terrible. A little over a month ago, I hit a trough so deep it had me questioning whether I was making any headway toward remission at…
Over the past two years, my diseases have been relatively stable, which is great. I am grateful to be on a medication regimen that keeps my diseases in check. However, what’s scary is that as a result of this longed-for stability, my fiancé has never seen me have…
Healthcare reform is a hot topic. People act like it’s a new subject, yet it has always been a controversial one. It seems that the attitude is if you don’t have the proper insurance, if you question the doctor, or if you insist that something is wrong…
Having grown up in a very close-knit family with two sisters, having kids was something I never really thought about. I always knew I wanted them. For years, my mind held a vision of the future that included three small people: faces with exactly half my features, wearing…
My face starts to itch. I’m noticing my skin is more photosensitive than ever before, and it’s annoying. I feel the little red bumps beneath my Urban Decay makeup, and as “beat” (meaning done-up) as my face is, I don’t feel like I’m in a Beyoncé video. Well,…
One topic I hear about often when it comes to lupus and chronic illness is the subject of employment. In the past 17 years, I’ve heard some incredible stories of compassionate employers from people living with lupus. Unfortunately, I have also heard stories that have made me cringe.
Recently I was discussing earnings with another warrior. I love learning new things, and they often relate to creating income online. This has caused a lot of people to come to me with business ideas they want to take online, or people who want to know how to…
The months following my lupus diagnosis were the hardest in my 22 years of life to date. It wasn’t just a matter of coming to terms with my illness, it also was having to completely revamp my perspective on life and accept that my reality had been…
If you are living with lupus, you know all too well that we never get a break from the disease. I sometimes tell my husband that I wish I could go a few days without even hearing the “L” word. Although I feel (after 17 years) that I…