When you’re chronically ill, an entire list of unwritten rules apply. Don’t be too vocal about your health struggles. Feel free to make waves, but just make sure they’re little ones, ’cause you wouldn’t want to make healthy people uncomfortable! Always accept advice from someone with a smile…
If you’ve ever partied like a rockstar, then you’ll know that while the night feels like it’s worth it, the next morning leaves you vowing never to party like that again. The night of a party is how it feels to have a high-energy, low-pain day with lupus.
In 2004, in the dead of a Victorian winter, my dad taught me how to surf. Calling it cold would be a gross understatement — it was absolutely freezing and bitter. Though I had no way of knowing it at the time, in retrospect, that year was life-changing…
I am visiting the United States after being away for two years. Quite a few people have reached out, wanting to spend some time with me. The first two weeks here in the States, I had an ugly flare that left me in pain and in bed. I…
I’ve felt my fatigue ebb and flow since the day of my diagnosis. I go through patches of good, bad, and terrible. A little over a month ago, I hit a trough so deep it had me questioning whether I was making any headway toward remission at…
Over the past two years, my diseases have been relatively stable, which is great. I am grateful to be on a medication regimen that keeps my diseases in check. However, what’s scary is that as a result of this longed-for stability, my fiancé has never seen me have…
Healthcare reform is a hot topic. People act like it’s a new subject, yet it has always been a controversial one. It seems that the attitude is if you don’t have the proper insurance, if you question the doctor, or if you insist that something is wrong…
Having grown up in a very close-knit family with two sisters, having kids was something I never really thought about. I always knew I wanted them. For years, my mind held a vision of the future that included three small people: faces with exactly half my features, wearing…
My face starts to itch. I’m noticing my skin is more photosensitive than ever before, and it’s annoying. I feel the little red bumps beneath my Urban Decay makeup, and as “beat” (meaning done-up) as my face is, I don’t feel like I’m in a Beyoncé video. Well,…
One topic I hear about often when it comes to lupus and chronic illness is the subject of employment. In the past 17 years, I’ve heard some incredible stories of compassionate employers from people living with lupus. Unfortunately, I have also heard stories that have made me cringe.