Columns

The Politics of Food

I discovered the magic of vegetables by mistake. When I started exhibiting lupus symptoms, I could not stand for long periods, and just walking across a room meant I’d have to sleep the rest of the day. To avoid starving, I bought fresh fruits and veggies and would grab…

Grieving the Loss of Warriors

Each time I learn of a warrior’s death, I get depressed. It doesn’t matter if I only just learned of them at the time of the announcement. I feel an overwhelming loss. The deaths of young people affect me even more. I wonder if they would be happy their…

Virtual Friendships and Real Grief

Passion, sadness, anger, frustration, and grief are the emotions hardest to feel, but they inspire my best writing. Today, I write a little teary-eyed from a place of grief — Bionews Services family member Serena Lawrence passed away on Sept. 26. The internet can be a wonderful place.

Answering Questions and Activating Advocacy

A guy I was seeing took it upon himself to Google me. (Yes, I’m “Googleable.” Lol.) He tells me this over the phone while I’m folding clothes. It’s usually no secret that I perform. Most guys I date are very aware of that early on. He doesn’t linger…

Think Before You Hit the Send Button

Sometimes I think people forget that on the other side of the keyboard are other people. Things we would never say to someone in real life are often typed and sent without any regard for how the other person may feel because they can’t see us. I am…

A New Definition of Happiness

At 18, my lupus diagnosis was still two years off, and happiness was a world of difference from what I now know it to be. Good times were a night out on the town, dancing till the wee hours of the morning, then reminiscing with friends while…

Losing It All, but Fighting Back

I opened my eyes this morning and knew it would be a great day to write. Why? Because with what I was feeling, I would be in bed all day. Pretty much everything hurts except my fluttering eyelids. Yep, no pain there. Battling lupus is like fighting the…

Trying a New Way

I think that because those of us battling lupus don’t look sick, people have no idea how much the disease affects every aspect of our lives. I know I’ve shared my feelings on this subject at various times in this column. Unfortunately, when your entire life is disrupted, it’s…

My Greatest Fear Is that My Parents Will Have to Lay Me to Rest

Death isn’t an abstract concept to me. I’m sick, and regardless of the fact that my sickness is outrageously unpredictable, my eventual descent toward passing will likely be pretty linear. I’ve learned to accept that deteriorating health will be par for the course for someone like me,…