Columns

Sometimes, I Just Want to Throw the Fight

I’ve seen many movies in which the characters are paid or forced to lose. A conflict of conscience always arises, even when their actions are to save a loved one or the money is to salvage the family home, farm, or whatever. A true fighter doesn’t really know…

What Lupus Life Is to Me

Mid-conversation, I’m often asked questions that lead to me revealing information the other person isn’t ready to hear about. It involves an unsettling, controversial word. Actually, it’s not just a simple word, but a name: lupus. And then comes an all-important question I hear time and time again. What…

47 Minutes of Sanity

I grew up in inner city Chicago, I am a Desert Storm veteran, I reared two amazing kids all alone, and I navigated the competitive waters of real estate for almost 20 years. Now, leaving my home is a challenge. Years ago, I saw a movie about an …

Loving Someone Who Is Forever Evolving

I’m a confessed hopeless romantic. Blame my parents! With 27 years of marriage under their belts and a grand total of 37 years together, I’ve spent my entire life watching a love story unfold. But just like any long-term relationship, their real-life fairy tale hasn’t always been smooth…

Nobody Owes Me a Good Life

When lupus decided to change my life, I was loving the one I was living. I think about people who hate their jobs, are barely getting by, and have no support from family and friends. I was not that person. I chose my career, and in the…

Thanks to Lupus, I’m Addicted to Control

I’m an addict. Before you get the wrong idea, I should explain. My addiction isn’t to any type of illicit or prescription drug, it’s not to alcohol, and I don’t even crave caffeine. No, my vice is something else, something harder to attain. I’m addicted to control.

Celebrities with Lupus Help to Bring Awareness

I don’t watch much television. I don’t know the names or faces of many celebrities. However, when I learn that a famous person is a lupus warrior, I put them on my radar. I want to support them because I know how hard I fight to have a…

Dealing with the Emotional Part of My Lupus Diagnosis

Anxiety and depression seem to be tag-alongs of lupus. Before my diagnosis, I would feel sad sometimes, but I wasn’t depressed. I would allow myself a three-day pity party, before saying, “OK, enough; time for solutions.” With lupus, there are no solutions. Life as I knew it is…

It’s All or Nothing with Lupus

I’m an all-or-nothing kind of person emotionally. If you ask how I am, you won’t ever hear me answer “all right.” I’m always good, great, or the polar opposite — in which case, I’m too “in my feelings” to reply. When studying or learning a skill, I’m either…

Figuring Out the New Me

Before lupus hit me, I stayed insanely active. I spent almost 20 years in real estate and was a fashion blogger doing many events that took me to various boutiques all over a few cities. I was having the time of my life. I’d recently moved to…