I didn’t understand what depression was until lupus. Before my diagnosis, I would feel a little down occasionally and allow myself three days of a pity party before I’d say, “OK, solutions.” I would find an answer to whatever was bothering me or stop worrying about it. That was the…
I liked to read and write as a kid. I journaled often and wrote as if no one would ever read my thoughts. Sometimes they did, but that never stopped me from speaking my truth. I was boldly honest about what I felt or thought. I debated whether I should…
When I first started exhibiting symptoms of lupus, I was so worn out that I stayed in my apartment for months. I’d moved to a new town and had no connections there, so I would sit on my balcony with my cellphone and talk to people on social media. What…
When I was a kid, a popular party game was pin the tail on the donkey. I don’t know if children still play it, but here’s how it works: A picture of a donkey is hung on a tree or another vertical surface. Players take turns to wear a blindfold.
A lupus diagnosis affects more than just the patient. Spouses, children, close friends, and even co-workers are changed when a life-altering diagnosis is delivered. While the person with the disease has physical issues, their diagnosis has consequences for those around them. For example, a parent with small children won’t be…
For years, I have been chasing remission. In my mind, it was the pinnacle. I could envision low to no pain, newfound energy, and no more medications. It was like lupus utopia in my head. Someday, I would be told my bloodwork looked normal, reflecting “remission numbers.” Utopia, however,…
Has anyone ever told you that you should never meet your hero? We often have an idea of who that person is, and then when we meet them, we’re sorely disappointed. We’d hyped them up to be a perfect person. Then we discover a flawed human. The disappointment can be…
I’m sure you realize that someone who has been dubbed a “hurricane” is pretty unapologetic. Forces of nature sweep in, do what they do, and sweep out, never looking back. I was once a hurricane. Now I jokingly say I’ve gone from being a “Hurricane in Heels” to a “Tropical…
Three years ago, I embarked on a journey of knowledge and hard work that has taken me around the world. It changed my life, and I’d like to thank the academy and accept this award … wait, wait, wait! Lupus is not an award. It’s not the result of hard…
I woke up this morning and had to talk myself out of bed. I prepared my laundry for pickup, but then needed to lie down to catch my breath. On some days, the mere act of sitting up has been a challenge. I remember moments of being a fitness competitor.