The Ever-changing Fatigue from Lupus

When healthy in the past, I looked at illness as a fairly static state of being. But what has become increasingly more apparent to me over nearly two years with lupus is that life with a chronic illness is anything but static. Some symptoms of lupus come…

7 Tips for Newly Diagnosed Lupus Patients

If you’ve recently been diagnosed with lupus, it’s completely normal to feel overwhelmed. New terms, new tests, new medication, and new doctors force you into a whole new world. Below are just a few lifestyle changes that might help you manage your lupus journey: 1. Educate yourself: Arm yourself with as much information as possible about lupus.

The Insatiable Tiredness I Feel

One thing I’ll always identify with lupus is a feeling that no amount of sleep is enough. Although I occasionally wake up feeling rested, for the most part, mornings are a gargantuan-size struggle before the day’s even begun. Of the year and a bit since my lupus diagnosis,…

I Don’t Want to Live a ‘Safe’ Life with Lupus

Most of my life involved taking risks that were calculated and well-informed. I was never one who had the state of mind to just do things without thinking them through first. Yet, now that I should crave the safe and the easy more than ever, I can’t help…

15 Signs That Confirm You’re Definitely a Spoonie

A “spoonie” is a term used by people with chronic illnesses. It stems from lupus blogger Christine Miserandino who explained her lack of energy using spoons. How do you know if you’re a spoonie? We’ve scoured the Internet for some examples of what it’s like to be…

The Ebb and Flow of Lupus Fatigue

More and more I’m learning that with lupus, nothing has any kind of permanency. I have days free of fatigue, and I feel so good that I question whether I’m really chronically ill. But those days never last. Not long after, I find myself hit with another…