More and more I’m learning that with lupus, nothing has any kind of permanency. I have days free of fatigue, and I feel so good that I question whether I’m really chronically ill. But those days never last. Not long after, I find myself hit with another…
Sushi is one of my favorite foods, and I used to indulge in a great steak every so often. Surf and turf was something I truly enjoyed, especially if lobster was involved. All of that changed once I was diagnosed with lupus. One of the first things…
We live in an age where simpler has become better, yet again. A quick Google search will pull up hundreds of articles on how to simplify life, from having children to raising your aging parents. I have yet to come across one that helps those os us with…
Living with lupus is a bit like having a puzzle with a missing piece. You may not notice initially, but when you start to put it together, you realize it’s not quite right. Maybe you push the thought of the missing piece out of your mind for…
What does sick look like? I often have wondered why people think they can tell just by looking at you what you are experiencing. Then they will try to tell you what you are experiencing. How many times have you expressed not feeling well, only to have someone say,…
When I first started getting sick, the fatigue was overwhelming and I didn’t move very far off my sofa or bed. Some days just sitting up, or getting out of bed, felt like an accomplishment. I often push myself a little harder than I should, but before I…
Lupus was the ultimate wrench in the works. There isn’t one aspect of my life that went untouched; nothing was safe or left unchanged. I have to admit that in most cases it’s been a positive thing. However, when it comes to love, I can’t bring myself…
I sometimes think the old-school way is the best-school way. I want the technology, research and all that comes with making progress with lupus treatments. However, when you are dealing with medical professionals, a little old-school goes a long way. Doctors with great bedside manners seem to be…
There was a period of time, not long after my diagnosis, when I felt as if I had truly lost everything. I felt overcome by my condition, as if it had sucked all the goodness out of every aspect of my life. Today, I find myself on…
I grew up in a pretty tough neighborhood and was reared by a single mom. She was tough, and she wasn’t overly affectionate. We never heard “I love you,” but we knew she did anyway. She would fight for us with fierceness. Sometimes — a time or…