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The Pain of Pleasure

Some days are good energy days, and some days are low pain days. Sometimes there are days when you are like, “I am going to throw it all to the wind and get what I get.” Recently, I took a trip to Laos and I learned a…

Anticipation Anxiety

Do you remember that old ketchup commercial about how you had to wait for the thick ketchup to slowly make its way out of the bottle? That ketchup may have been worth the wait, but lately I have noticed a few things about me and anticipation. It’s making…

Wanting to Live Abroad, but Blocked by Lupus

As I sit writing this in a small pub in Edinburgh, Scotland, I’m both elated and disheartened. In the last 28 days, I’ve traveled in 10 countries throughout Europe, falling more and more in love with each destination I discover. My love for the world has swelled…

Summer ‘Glamping’ with Lupus

  Summer in our family means a lot of fun and a lot of sun. We’re nomadic by nature already, and traveling and camping are a big part of our lives. So, when school lets out, we pack our bags and spend the summer traveling. The boys take a…

Motivating, Inspiring, Encouraging … Oh, My!

I live on social media. I constantly share information about food, lupus, business, etc. It seems my day is not complete without at least one post on Facebook or Instagram. As I have shared my lupus journey, people have said things to me that were encouraging. When I…

The Issues with Group Travel When You Have Lupus

Late last year, I booked a 16-day Contiki tour in Europe with my sister. Group travel is awesome because there are significant discounts when you travel in a group of 50. Plus, it is a once-in-a-lifetime experience to make amazing new friends while exploring the world. But,…

Growing Old Before My Time

Every time I go for an appointment with my renal doctor, I’m reminded that I’m an anomaly. Before seeing my specialist, I jump on the scales in the waiting room, the procedure for all patients. But as I unlace my shoes and step up to be weighed,…

Climbing Mental Mountains

I have always been a prissy girl, a makeup junkie and a fashionista, so hiking has been a giant ‘no.’ Camping? I don’t think so. But lupus has changed this. Am I physically hiking and camping? No, but mentally, I am going on a daily hike, taking…