Columns

Lupus and the Beauty of Hindsight

Though it took me some time to realize, there were certain things that I lost in the instant I was diagnosed with lupus. The saying goes that we never know what we have until it’s gone, and for me that couldn’t be truer. There’s a whole other…

Time for New Priorities, So Vanity, Step Aside

Once upon a time, I had two rooms full of shoes. One room had high heels, the other had wedges. I rarely wore anything that was closer to the ground than four inches. I was, after all, the Hurricane in Heels, so flats were not in my vocabulary.

Learning, Hard Way, Not to Quickly Judge Others

When I was diagnosed with lupus I lived alone, and I still live alone. Because of this I still need to do things like get groceries, even if I have just been released from the hospital with inflamed organs. Some of us “look great,” despite the handicapped placards…

How I Explain Lupus Fatigue: Imagine Never-ending Jet Lag

If you’ve traveled far from home, it’s likely you’ve felt jet lag. There’s nothing quite like the euphoria of knowing you’ve got nothing but work-free, relaxing days ahead of you. But there’s also no other phenomenon like jet lag ― unless you live with lupus fatigue. When I…

I Know You Mean Well, But …

“Have you tried swimming?” “Maybe you should take an Omega-3 supplement.” “Walking more will help you build your stamina.” As lupus patients battling everything from muscle fatigue to a total lack of energy, we have heard as much as we want of these type of comments from people…

The Pain of Pleasure

Some days are good energy days, and some days are low pain days. Sometimes there are days when you are like, “I am going to throw it all to the wind and get what I get.” Recently, I took a trip to Laos and I learned a…