The months following my lupus diagnosis were the hardest in my 22 years of life to date. It wasn’t just a matter of coming to terms with my illness, it also was having to completely revamp my perspective on life and accept that my reality had been…
If you are living with lupus, you know all too well that we never get a break from the disease. I sometimes tell my husband that I wish I could go a few days without even hearing the “L” word. Although I feel (after 17 years) that I…
Recently, I had a very ugly flare that caused me a lot of pain. Every time I have a flare, it really sets me back — not just physically, but mentally as well. I have an increasingly harder time recovering after each flare. For so many of us,…
I took my niece to a soul food restaurant in Harlem one day. It was there that I realized that growing up in Flatbush can sometimes limit your taste buds to only Caribbean foods. I suggested she order the collard greens. She made a face. “That’s gross!”…
Thursday of last week was a big day for me. Actually, scratch that. It was a huge day. A milestone. That Thursday, every moment of pain and struggle over the last two years finally amounted to something wonderful. In revealing the results of a recent kidney biopsy, my…
I’m getting married! I’d like to say that’s the reason for my column’s absence, but the reality is that the last several months have been crazy. In December, I closed on a house. In January, I moved. In February, I got engaged. Then, from March through May, I…
My boyfriend, Jordan, is my best friend and my rock. We’ve built our relationship’s foundation on a deep-seated love for food and the understanding that, in so very many ways, our realities with young adulthood are both uncommon and generally misunderstood. You see, Jordan doesn’t just sympathize with…
What others call “overdoing it” I call “maximizing the hours of the day.” One example is this past weekend, for which my Saturday was scheduled to go like this: 7:30 a.m. – Walk for Lupus in Manhattan 9:30 a.m. – Perform at a conference at Fordham University…
When I initially received my diagnosis, a regimen of medications was sent to me overnight. I had spent most of my adult life following a healthy lifestyle, so it took me days to read the side effects. It wasn’t because I had issues comprehending the words, but…
Barely a week after arriving in Thailand, I was hospitalized. Doctors told me that my platelet count was so low that they were afraid my brain would spontaneously start bleeding, among other things. I am so foolishly optimistic that I figured it would right itself and I would…