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How I Found Gratitude in Spite of Multiple Illnesses

When your list of chronic illnesses keeps getting longer, it’s hard to find things to be grateful for. It is so easy to sink into a deep depression and think that you will never be happy again. These kinds of thoughts can become self-fulfilling prophecies. Slowly but surely, I…

Replacing the Rug, One Piece at a Time

After three years, some things are finally leveling out for me. When I was diagnosed with lupus three years ago, I really felt that the entire rug had been pulled out from under my life. In fact, it had. When you are told your body has turned against you and…

Finding Ways to Make Sleep Come More Easily

My doctor sent me for a sleep study after my husband told him how loudly I snored. I tried to tell them that it wasn’t that bad, but as it turned out, it was. The night of the study, they put a continuous positive airway pressure (CPAP) machine…

On the To-do List: How to Cope When You Have Brain Fog

Lupus ‘brain fog’ is aptly named When I am tired or under a lot of stress, my brain gets foggy. The official name for this is cognitive dysfunction, but it’s commonly referred to as brain fog because it’s like trying to find your way in a dark, dense…

What I Must Do When I’m Angry

Lupus sucks. Let’s just acknowledge that from the onset. I was living an awesome life, and then it came to a screeching halt. Lupus was pretty aggressive with me. Almost immediately, I felt anxiety and confusion, and eventually, anger. These are signs of depression, but I didn’t know that at…

The Difference Between Tiredness and Fatigue

Everyone is entitled to a bad day. But for me, “bad” can’t seem to contain itself to just 24 hours. It usually comes in waves that last weeks or months. The defiant optimist in me likes to think that, in a way, I need bad days because they help…

Learning to Identify My Migraine Triggers

If you have never experienced a migraine, you’re a lucky person. A migraine is the mother of all headaches: a throbbing, pounding pain so bad it makes you nauseated. Light hurts your eyes; even a regular bulb in a lamp will have you squinting. Sounds ricochet around in your…

My Worth Is Not Measured by My Work

I spent almost 20 years working in real estate in Florida. I loved the work, as it had me at times out measuring homes, meeting new people, and spending time in the sun. Lupus says stay out of the sun, it eats your energy, and the pain…