Systemic lupus erythematosus (SLE) patients who volunteer for phone counseling with other lupus patients also benefit significantly from the experience, reporting reduced isolation and an increased ability to cope with their own disease, a study found. The study, “The Effect and Psychosocial Impact of a Longstanding Telephone…
Passion, sadness, anger, frustration, and grief are the emotions hardest to feel, but they inspire my best writing. Today, I write a little teary-eyed from a place of grief — Bionews Services family member Serena Lawrence passed away on Sept. 26. The internet can be a wonderful place.
Lupus really does a number on a person, both mentally and physically. When many of us learned we have this incurable disease, for some strange reason, we began feeling guilty. Either because we worry about loved ones, are unable to do something we were able to do in…
Dealing with an illness isn’t easy, and going through it alone can make things more difficult. Support is one of the most important aspects of dealing with any disease, including lupus. While family and friends can be a crucial part of your support system, it helps to seek advice from…
Lupus stinks! It consumes your life. It takes over so many aspects of your life. I can tell you that when I initially got my diagnosis, I really thought I could deal with it on my own. How bad could it be to deal with being sick?…
When my diagnosis was shared with me by the doctor, my mom said “You need to find a support group.” I agreed. I knew that while my family was as supportive as they knew how to be, what I was going through required people who could relate,…