Why I Tell People, ‘It Could Be Worse’

When someone expresses their sympathy about my life with lupus, a typical response just rolls off my tongue. “It could be worse.” It’s true. Life with lupus could be many magnitudes worse than it is for me right now. Crippling arthritis, unbearable chronic pain, migraines, brain fog, and recurring mental…

The Cost of Using Immunosuppressants

I remember when catching a cold felt only irritating; when it meant a couple of days off school with Mum forcing me to down foul cherry-flavored cough syrup and maybe some chicken noodle soup. Those were the easy days of cold and flu. I wish that would still be the case.

Suppressing One Monster by Exposing Myself to Others

In the midst of a harsh Australian summer, for the very first time this year — but definitely not the last — I’m sick. The silly thing is that I’m always so hopeful when I see one of my colleagues come into work coughing and spluttering. “Maybe I…

The Trouble with Immunosupressants

Immunosupressants are simultaneously the very best and worst things for my health. These magic medications have played a large part in making sure lupus has been so unsuccessful in its mission to take hold of my kidneys. But they also caused me to be sick for a…