“Kristi” is a surfer, barista, and university student studying for arts and science degrees in philosophy and mathematical modeling. Living on the picturesque Bellarine Peninsula on the southeast coast of Australia, she’s deeply passionate about salt water and amazing coffee — even though she’s not allowed to drink it. Above all else, she loves traveling the world! Diagnosed with stage IV lupus nephritis at 20, she’s determined to not be defined by her autoimmune condition. Using writing as a medium for self-expression, she hopes to share her life and journey to both raise awareness and support others in similar situations. A big believer in the concept of dialectics, she loves sharing and hearing unorthodox, sometimes controversial, views. She’s quirky by choice, inquisitive by nature, and smiling always!
Before every appointment with my renal specialist, I have to get blood and urine testing done. In high school, the idea of having to get an injection used to leave me feeling light-headed, now it’s just standard procedure. But even though I’ve gotten used to it, I’m so…
Traveling is one of my greatest passions. From the very first moment I set foot overseas, I was hooked. I love the culture shock and being thrust into a world that’s completely unlike anything I’ve ever known. But traveling with a chronic illness is potentially dangerous on…
I was a lot of things before lupus, and my diagnosis hasn’t changed. Of course, it is undeniable that my life has been altered by chronic illness, but not nearly as much as many might assume. When I think about what I’m capable of, my mind doesn’t go…
Some might be ashamed of their status as someone with chronic illness, however, I’m not. I wouldn’t say that I’m proud of it, but it’s also not something that I’ll ever work to hide from the world. In fact, I’ll endeavor to share it as much as…
Part of living with lupus is knowing that your body lives outside of the norm. It means accepting that, for the most part, you have no predictable sleeping pattern, and if you should be lucky enough to regulate one, it’s pretty messed up. Living with lupus means…
Timid is an adjective that would’ve been used to describe me throughout my entire life. I just wasn’t born aggressive. When all the other kids were dying to bowl each other over to get to the ball, you’d find me trailing behind the pack, out of the action.
I’m smiley, optimistic, and happy-go-lucky; it’s the way I’ve always been. I take everything in my stride, which is not to say that I don’t get knocked down. But no matter how many times or how hard I go down, I always get back up with a…
Most of my life involved taking risks that were calculated and well-informed. I was never one who had the state of mind to just do things without thinking them through first. Yet, now that I should crave the safe and the easy more than ever, I can’t help…
I’ve got to hand it to you. You’re good at what you do. If your aim was to turn my life upside down and alter it beyond repair, then congratulations –you did it. You’ve worked hard to change me and it’s paid off. There’s very little trace of…
At the crossroads of a tough decision we often find ourselves in need of a little guidance. It’s generally pictured as a heated debate between an angel on one shoulder and a devil on the other as they hope to win the argument for the indecisive human. Too…