I research every medication I am prescribed. I have doctors explain my test results as if I am 6 years old. I ask questions and when doctors don’t answer in a way I fully understand, I rephrase and research. I weigh the benefits and risks before deciding to take…
At one point or another, everyone realizes that pleasing the masses is impossible. With that realization comes freedom. The freedom to finally live the way you have always wanted. The freedom to stop caring about what anyone else might think of you. Most people reach the “I don’t…
There are days when my life feels like a Milli Vanilli song; it’s being faked, but it’s known for the part that is fake! Unfortunately, lupus is very real. There has been a lot of rain lately, and as I move through my home I realize I am hurting…
As of May 22, 2020, I have lived with my lupus diagnosis for four years. I have commemorated the past three anniversaries on their exact date with a photo and paragraph. Half of me has always loved celebrating on the actual date of my anniversary. That’s partly because in…
I was awake for half the night. This is not unusual, but often I am coming up with topics to write about in this column or speak about on my YouTube channel. Instead, I was traveling down memory lane to things I have tried to avoid and misconceptions I…
I have thought about death and mortality more than the average 20-something. In fact, I love nothing more than debating the philosophy around it. To me, death isn’t a cause for anxiety or fear; it is a fact of life. A fact I have been at peace with for some…
I am slight in build. I am a woman who is bald. I am battling lupus. I am not fragile. If you were to stop and look at me, I might look as if I could break. At the start of 2020, I weighed 99 pounds. I’m happy to report…
I often remind myself that worrying isn’t helpful, especially because stress is a lupus trigger. In my past life as a well person, I always thought I handled stress masterfully. But after being diagnosed with lupus, I notice that my biggest flares happen when I experience high stress levels.
We are living in a unique time, and I am not referring only to the COVID-19 pandemic. How many times in your life have you wished you had more downtime? How often have you wished for more time to do the less urgent, little things you never seem to get…
I was hospitalized the first month of this year, and I hope it’ll be the only time this happens in 2020. After the hospital, I was sent to a rehabilitation center. It was the first time since my diagnosis that I did rehab at this level. When I was younger,…