It’s Sunday. Today consisted of getting up just before midday, eating leftover soup, watching “The Big Bang Theory,” and baking an apple cake and banana bread. After I wandered upstairs midafternoon, my partner, Felix, asked what I wanted to do. My answer wasn’t an indicator of what I wanted to…
Wonderfully weird: That’s how I’d proudly describe myself. I’ve always been weird. And much to the dismay of a younger Kristiana, I’ve accepted that I’ll always be weird. By nature, I’m a clumsy and kooky dork. But I’ve reached a point where I’m just too old to care that…
In the seven years since I was diagnosed with lupus, the first year was undoubtedly the hardest. The first six months were a cacophony of dietary restrictions, lifestyle changes, and medication. I left the hospital after my weeklong stint with a fistful of prescriptions, a head…
I remember the first day I was fully aware of my now chronic fatigue. But it would take a week or so after that for me to give it an official name. It’d been creeping up slowly. For two weeks, I’d been growing increasingly tired, until finally, I felt…
Something gets to me when I see a chronic illness depicted on screen. In particular, a character getting a lupus diagnosis tugs at a special place in my heart. I’ve watched characters get diagnosed with lupus on the sitcom “Scrubs,” for instance. And then there was an episode…
When I hear the term “self-care,” I envision sitting in a bubble bath with candles all around me, my hair tied up in a lopsided, messy bun, while lo-fi beats play in the background. It’s a glorious image, but entirely fictional. Firstly, because I hate baths. There’s something about sitting…
Sometimes I catch my partner, Felix, looking at me. He still looks at me the same way he did on our first date. His eyes shine as he dreamily gazes at me in a daze. When I catch him doing this, I just have to know what’s running through…
In late 2016, I was lost, lonely, and desperate for life to be different. In the wake of a lupus diagnosis, I’d never felt more alone or misunderstood. The life I’d long imagined had disintegrated into thin air the moment I was introduced to the word “lupus.”…
Sometimes I feel like the universe has a scale with my name on it. If the needle ventures past a certain level of good, it gives me a dose of not-so-good to balance me out. In January, I experienced an unusual amount of smooth sailing, so it was only fitting…
I remember when I was diagnosed with lupus. It felt like the world was somehow spinning too fast and too slow at the same time. On one hand, I seemed to be under constant fire from all angles. The fatigue was overwhelming. Adjusting to life while learning to…