While my disease is doing better each day and I am feeling better with every treatment, there are some things that will never go away. I will never be “cured” in the traditional sense. I’ve tried so many things and so many doctors, and have been poked and…
Being diagnosed, I felt like the weight of the world got lifted off me. But slowly, as I began to understand more and more, I started to feel something else. I felt heavy and hopeless with my new lack of possibilities in life. Over the last month or…
There are plenty of things I dislike about lupus, and a few I’d go as far to say I hate. But the thing I hate most? It is how lupus is the only thing in my whole life that has made me feel truly uncomfortable in my own…
I recall a time where there were only two types of days: Good ones and bad ones. Of late, there are all kinds of days broken down into little categories. While overall a day can be considered “good,” that doesn’t necessarily mean it’s been like that on every…
It seems to be a growing trend that doctors have a lot less time to spend with their patients. Many make you sit in a room all alone long after your vitals have been taken, with old magazines full of old news. While you’re sitting there, all of the…
It doesn’t matter when or where I tell someone I have lupus, the reaction is always the same. The person’s face will drop as they realize I’ve just shared with them that I have a illness I’ll live with forever. Cue the onset of sympathetic and pitied glances.
Lupus and a healthy skin care routine go together like Tacos and Tuesday. Well, minus the fact that one carves up images of margaritas and good times, whereas the other conjures, in my mind at least, images of dried skin, red rashes, sun sensitivity and bizarre sores…
It seems that people like to lay blame when they don’t have a full understanding of something. They tend to seek an explanation and when they can’t, then decide it must be someone’s fault. I have a feeling that those who deem themselves healthy think they mean well…
I’ve always been an over-thinker. There’s rarely a time when there isn’t something racing through my head. But it used to be different, a lot more carefree and a little less serious than it is in my present. Now I don’t just over-think, I over-worry – and it’s…
I don’t know how to tell you this, but turning 21 isn’t going to be quite what we expected. Your life is not going to be a fairytale. You’re going to face some really hard times from which no one can save you. You’re going to learn that…