Lupus Patient Shares How the Disease Has Changed Her Life


In this video from Nada Sherif Selim, Amira El Shorbagy shares how her life has changed since she was diagnosed with lupus in 2009.

Spoken word artists, Shanelle, talks about her journey with lupus. 

Once an accomplished swimmer who would spend six hours a day in the pool, Amira is now forced to watch from the sidelines. Lupus has caused her to move countries for treatment, put on 25 kilos (55 pounds) and undergo six months of chemotherapy treatment.

Amira most misses playing sports and being active, which she can no longer do as she suffers from debilitating fatigue. She’s struggled to come to terms with her new appearance, as well as the disease itself. She rebelled against treatment and began smoking and drinking.

Finally, Amira turned a corner and found solace in painting and acting. She is now living a healthy life and focusing on her future.

Read our tips for living well with lupus here.

Lupus News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or another qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

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One comment

  1. Peggy says:

    I am a sliver of the person I used to be. Most days just getting out of bed is a struggle, no less daily chore or keeping up a household or taking care of my family. The stress is that I want to do these things, I miss them. The chronic fatigue & pain are disabling. This doesn’t even include the permanent damage to my body that nobody can reverse. I hate complaining & negativity so I try to practice mindfulness & repeat the serenity prayer as often as I need to. Hopefully my agels are looking out for me!

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