Upper limb exercise lowers pain and improves hand function, daily activity performance, and quality of life in people with systemic lupus erythematosus (SLE), according to a pilot clinical trial. The trial’s results, “The impact of upper limb exercise on function, daily activities and quality of life in…
Psychosis is a rare manifestation of systemic lupus erythematosus (SLE) that generally appears early, in the year before or within the first three years after SLE onset. The disorder is generally treatable, with patients fully recovering and rarely relapsing, a large international prospective study shows.
People with childhood-onset systemic lupus erythematosus (cSLE) develop significant disease-associated damage early in life and have lower quality of life in their adulthood, without achieving medication-free remission, according to a recent Dutch study. The study, “Long‐term clinical outcomes in a cohort of adults with childhood‐onset Systemic Lupus…
Iron deficiency, measured through the size variation of red blood cells, is correlated with increased fatigue in systemic lupus erythematosus (SLE) patients, research shows. The association seems to be independent of age, ethnicity, or geographical location. This is the first time a blood biomarker has been linked to fatigue…
Patients with lupus found the Patient Reported Outcomes Measurement Information System (PROMIS) assessment tool to be relevant, valuable, and useful in improving clinical care, according to a new study. Results from the study, which was conducted at the Hospital for Special Surgery (HSS) in New York, was presented at the…
In the wake of the opioid controversy, it’s important to understand that some patients will do just about anything to resolve their pain. Without stronger medications, most will suffer in silence. Some are even being told to take Tylenol for pain that was once treated with much stronger drugs. The…
Many systemic lupus erythematous (SLE) patients suffer from vocal disorder, or dysphonia, and should get voice therapy to improve the overall quality of their lives. So argues an article, “Voice disorder in systemic lupus erythematosus,” that recently appeared in the open-access journal PLOS One. Back in the 1950s, people with SLE…
New research from Switzerland reported that disease activity in patients with systemic lupus erythematosus (SLE) has a negative impact on the quality of life of these patients. The study, titled “Impact of disease activity on health-related quality of life in systemic lupus erythematosus — a cross-sectional analysis of the Swiss Systemic…
A large-scale retrospective study found that patients with systemic lupus erythematosus (SLE) may be twice as likely to develop dementia as others of similar age and sex, a finding that may help to improve their care. The study, “Increased Risk of Dementia in Patients with Systemic Lupus Erythematosus: A Nationwide…
Finding out a friend, family member or co-worker has lupus is devastating, however, despite our best intentions, we can often accidentally say something that may be offensive or hurtful. What the person really wants to hear is that you’re there for them and thinking of them. With that in mind,…