5 Things to Know About Traveling With Lupus


Pretty much everyone likes to travel. But sometimes it’s not as easy as it should be–for several reasons. For healthy people, traveling can sometimes be tiring, exhausting and hard to plan, but for someone living with a chronic illness it can be even harder. Take lupus patients as an example.

If you’re living with lupus, planning a trip can be tricky and take a few extra measures. Each trip needs to be very well planned when you are dealing with unpredictable symptoms. Even the stress of all the planing, can cause a flare. So to help you deal with that stress and make a getaway a little easier on you, check out this list of tips from Kellie “Hurricane” McRae:


1. Make sure you have all of your medications with you.


As much as we don’t like popping pills, staying on top of your regimen will help reduce the possibility of a flare, and the stress of trying to figure out where to go if you run out or forget them.

Besides stress, there are some other things that can trigger flares. For example, did you know that sugar might trigger a lupus flare?

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  1. Carol Howland says:

    These are good tips, but as a frequent traveler with lupus for more than 30 years and now also a senior, I’d also add these: Take a folding portable cane just in case you need it. Even if you don’t use a cane locally, you may need one overseas, where old buildings may have lots of steep stairs, and old roads are cobbled and broken. It also helps with the added weakness that comes with travel fatigue. Before the trip, I practiced with the cane on all sorts of stairs before the trip to figure out the est way to handle them, which sometimes meant going backwards or sideways down them. Fatigue is less if you allow at least 2 or 3 days in one place before traveling on to the next town. The tubs in hotel bathrooms are often very high-sided and hard to climb over safely,but they often have rooms with walk-in showers so it doesn’t hurt to ask. Check reviews of airports as they vary greatly in walking distances, availability of working elevators, availability of wheelchair service, etc. If you must use a less accessible airport, call ahead about accessible options. For instance, in Morocco, I had to use a lift to enter an airplane because they only had steep ladder-like steps to board the plane. I’ve found guided tours that portage your luggage and travel by bus to be a good solution as I’ve gotten older and somewhat more disabled, as having to carry a bag-load of medications and medical devices in addition to the usual draggable suitcase can make

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