When people hear about a lupus diagnosis, they don’t often think about what it really costs to have the disease. In fact, many who don’t know much about it think it can be “managed” and don’t really take it very seriously. Those of us who battle it daily know that lupus…
I’m exactly half of both of my parents. I have half of each of their facial features and if you know all three of us, you’d know from my stubbornness, determination, work ethic, and perseverance that there’s no possible way I could be anyone else’s child. Even as…
In her debut column for Lupus News Today, lupus patient specialist and columnist Kellie McRae opens up about the guilt and uncertainty she felt in the early journey toward her lupus diagnosis, and the impact that her rapid weight loss and declining health had on her family.
I’ve grieved for the loss of a loved one, felt pain because no matter how much I wanted them to be with me, they simply couldn’t be anymore. I’ve felt grief in shattering heartbreak, as I had to understand that the person and relationship I yearned for no…
A Letter for Alexander Hello my love. First and foremost,  you’re not in trouble. 😉 In fact, I am writing this letter to let you know how proud I am of you and how much I love you . I know its been hell these last few years and I…
It all started 2 months ago … 5,000 mile road trip … before my epic road trip and literally while I was sitting at my doctor’s office. Not only was my body achy but just like every other day, I felt like I had been hit by a truck. All…
There are plenty of things that have changed since my diagnosis. For example, I now live on a low-sodium and low-potassium diet and the convenience of being able to eat whatever I want whenever I want no longer exists. I take a cocktail of prescription medication that I…
I’ve always had some kind of sense of direction in life. Always had a rough idea of where I wanted to be headed and if I fell on my face, hey, that’s A-OK. I’d just dust myself off, throw my head back, laugh at myself and continue on my way.
I’ve been wanting to talk about this subject for a while now, but it’s so complex a topic that I didn’t even know where to start. Hell, I hate ’em and love ’em all in the same instance, but they are a necessary evil in my life. You…
Editor’s Note:Â Kristiana Page is the latest columnist to join the Lupus News Today team. In her new column, entitled, “The Girl Who Cried Wolf,” she explores a wide range of topics that hit home for Lupus patients. Her first post talks about her diagnosis as well as…