Author Archives: Kristiana Page

I’m Living on Borrowed Time, but I’m Still Here

Lupus often takes years to diagnose. By the time doctors work it out, the disease has usually been active in the body for long enough to cause significant and sometimes irreparable damage. At the time of my diagnosis four years ago, I was an unusual and lucky case. Though…

I’m Too Tired to Share My Reality

I wish there were a way to take screenshots of the significant moments of my journey with lupus. I wish there were a way to collate those moments, and the feelings that came with them, and turn them into a USB download. I wish that when I started to explain…

Lupus Lessons: What Currencies Run Your Life?

Lupus is the giver of many lessons, and one of the most important lessons it taught me was how to value the things in my life. Since I was a child, my dad has always told me that time is the most valuable gift that life offers us. But…

By Giving Up the Fatigue Battle, I Move Toward Acceptance

Earlier this week, as I was driving home from work, I realized I’d finally evolved to a new stage of accepting my lupus. A fresh pang of fatigue hit, but as it washed over me, I recognized that my reaction was different than previous ones. My response to fatigue has…

3 Ways You Can Help Your Chronically Ill Friend

“I wish there was something I could do to help.” This is a common response when I tell someone about my chronic illness. Sharing with someone that an external force is hurting you prompts a wave of emotion and action. They believe they can help, and more than that,…

Finding the Spark to Build a Fire Within

When I hear that someone I know has been freshly diagnosed with a chronic illness, I feel deeply hurt. I have flashbacks to the months I spent coming to terms with my own diagnosis, and my heart sinks. I would not wish a chronic illness on anyone. A life…

I’m Traveling to Vietnam, Even with Lupus

I finally made it. I worked my butt off all year and pushed through one last week of grueling early starts, and now I’m on the plane. Destination: Vietnam. This is my fourth overseas venture since being diagnosed with lupus. Every trip, I compare how I travel with lupus to…

Napping My Way Through Life

Adjusting to life with a chronic illness requires you to alter your mindset in many ways. It might be a fundamental change, an existential shift that alters your perspective on life itself. Or it could entail changing your values and what something means to you. I used to hate napping…

It’s the Little Things that Matter

My partner, Jordan, has been in the hospital for several days to treat a flare-up of his ulcerative colitis. He is in the same hospital where I was diagnosed with lupus. The familiar smell of hand sanitizer sparks flashbacks to my time here in 2016. I remember what it…