Taking into account patient-reported lupus flares in clinical practice may help assess disease severity and the economic impact of the disease, including loss of work productivity and hospital care, according to a recent study. Current measurements of flares do not include a patient’s own perspective. That…

An international panel of experts on lupus has defined key issues that need to be overcome — with disease variability being the biggest challenge — to improve the clinical outcomes of patients living with the disease, as part of the Addressing Lupus Pillars for Health Advancement (ALPHA) project.

A survey found that 63 percent of American respondents either had never heard of the autoimmune disease lupus, or knew little about it, the Lupus Foundation of America (LFA) announced during Lupus Awareness Month in May. Results of the Lupus Awareness Study call for better understanding of…

An ongoing online survey to examine the distribution of blood types among lupus patients could provide important information about why people develop the disease, researchers say. The survey is a collaboration between the University of Wisconsin–Madison and the Scleroderma Education Project. The two groups have already conducted a similar survey among…

American lupus patients will get an unusual chance in person or online to tell therapy developers and regulators what future treatments ought to do for them. Three national organizations are sponsoring the Washington-area gathering on Sept. 25, which those unable to make the trip can participate in by watching a…

Despite progress in diagnosing and managing lupus, 43 percent of those with the disease worry about the physical inactivity and social isolation it causes, finds a new survey released May 10 — World Lupus Day — by the World Lupus Federation (WLF). The Twitter poll, conducted among 2,048 people in…

Studies have revealed there is a gap between what lupus patients experience and what they tell their clinicians with results from a recent survey showing that closing this gap may lead to better communication and improved clinical management of the disease. The 2014 online survey funded and developed by GSK included 905 global respondents…