5 Things to Know About Traveling With Lupus

2. Have your emergency contacts readily available.


Pin the names and contact numbers, and how these people are relevant to you, in a place with your travel documents (airline, train, bus tickets or with your passport).

Here are seven tips for newly diagnosed lupus patients.


  1. Carol Howland says:

    These are good tips, but as a frequent traveler with lupus for more than 30 years and now also a senior, I’d also add these: Take a folding portable cane just in case you need it. Even if you don’t use a cane locally, you may need one overseas, where old buildings may have lots of steep stairs, and old roads are cobbled and broken. It also helps with the added weakness that comes with travel fatigue. Before the trip, I practiced with the cane on all sorts of stairs before the trip to figure out the est way to handle them, which sometimes meant going backwards or sideways down them. Fatigue is less if you allow at least 2 or 3 days in one place before traveling on to the next town. The tubs in hotel bathrooms are often very high-sided and hard to climb over safely,but they often have rooms with walk-in showers so it doesn’t hurt to ask. Check reviews of airports as they vary greatly in walking distances, availability of working elevators, availability of wheelchair service, etc. If you must use a less accessible airport, call ahead about accessible options. For instance, in Morocco, I had to use a lift to enter an airplane because they only had steep ladder-like steps to board the plane. I’ve found guided tours that portage your luggage and travel by bus to be a good solution as I’ve gotten older and somewhat more disabled, as having to carry a bag-load of medications and medical devices in addition to the usual draggable suitcase can make

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