Lupus is not a butterfly experience for Candace J. Semien. It is a continuous wolf attack. She lives with lupus and Sjogren’s syndrome — which, she says, are not badges of survivor honor but a harsh reality. She infuses diversity into the growing lupus awareness and advocacy megaphone.
A journalist by nature, she pulls and prods for ways to live purposefully while having limited abilities and dis-abilities. Through this column, Candace asks hard questions about lupus and shares answers that will improve the lives of people living with chronic, autoimmune diseases while encouraging honest and bold patient-family-doctor relationships.
One of the most horrendous aspects of living with systemic lupus erythematosus (SLE) is dealing with the additional diseases and chronic conditions that lupus causes. Lupus is insidious; it ushers in more symptoms and new diagnoses without warning…
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