“You know, lupus thrives in extremes,” a rheumatologist told me. His tone was bland and matter-of-fact. “No, I don’t know much about lupus besides its misery,” I responded. “For one thing, your body will see elation and stress with the same intensity, and that may trigger flares.
Celebrate With Me — Candace J. Semien
Lupus is not a butterfly experience for Candace J. Semien. It is a continuous wolf attack. She lives with lupus and Sjogren’s syndrome — which, she says, are not badges of survivor honor but a harsh reality. She infuses diversity into the growing lupus awareness and advocacy megaphone.
A journalist by nature, she pulls and prods for ways to live purposefully while having limited abilities and dis-abilities. Through this column, Candace asks hard questions about lupus and shares answers that will improve the lives of people living with chronic, autoimmune diseases while encouraging honest and bold patient-family-doctor relationships.
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“I’m so glad you’re here and you chose yourself.” That’s how wellness educator Staci Mitchell opened a series of virtual TARDIS Talks on lupus last month. Something about that statement caused us to pause and reflect during the session, as she acknowledged and celebrated our self-focused arrival. The idea…
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