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There’s a question many of us are asked every single day: “How are you doing?” Over years of navigating lupus, appointments, societal expectations, and the quiet pressure to keep up and not be a burden, I’ve learned some reflexive answers: “I’m good.” “Hanging in there.” “I can’t complain.” After…

If ever you need the raw, unadulterated truth about living with lupus, you should attend diverse support group meetings. Make sure they are diverse and have a member or two with characteristics similar to yours, such as age, gender, symptoms, lifestyle, culture, and status. These lupus support group discussions…

Every year, as winter begins to fade away and the first hot day takes root, I feel a quiet anxiety about what comes next. For many people, spring is like a rebirth. It brings longer evenings, more sunshine, and the promise of beach trips, boat days, and outdoor concerts. But…

“The body keeps the score.” Before I was diagnosed with systemic lupus erythematosus, I’d never heard that saying. Over the years, though, I’ve found it to be true. Yes, the body does keep the score, and, unfortunately, the body’s limitations dictate the day. Its disabilities and diseases alter careers,…

Living with lupus is such an individual, personal experience, something I have written about frequently. I assume the same applies to many other chronic conditions as well. Yet we share many things in common, too — the chaos, fear, labs, medicines, limitations, loneliness, altered friendships, bruises, falls, loss of…

Lupus attacked me in an entirely different way this year. How did I respond? You guessed it: I rushed to get an urgent, same-day visit with a specialist, then sprinted to the emergency room when the pain kept shifting and didn’t respond to any treatment I had at home.

There’s a touchy topic in the world of chronic illness that most of us have to deal with at some point: how to navigate the workplace. I’m talking about the real-life version, not the picture-perfect, über-polished LinkedIn one. It’s the reality of sitting in your car before walking into the…

Failure often makes you reflect on the things you didn’t see earlier. When you miss the mark, you tend to consider what caused the misstep and what steps you could have taken to avoid it. Success doesn’t demand the same kind of reflection, although doing so can help you maintain…

Here’s a truth I believe many of us can agree with: Dating in the modern world is a wild ride. Even if you are healthy, it takes a lot out of you. Add in a chronic illness diagnosis and whoa! Suddenly, that roller coaster has a few extra loops, a…

“I hope in 2026/ you let everything/ you survived become/ your superpower.” — @spiritdaughter Those words, written in a simple white font, sit on a silver-spotted, emerald green background. They are part of a carousel of quotes posted on Instagram by author Jill Wintersteen. I reread…