The French immunotherapy vaccine developer Neovacs joined with Lupus Europe to raise awareness of the disease on World Lupus Day yesterday. Neovacs develops vaccines for lupus and other autoimmune diseases. Lupus Europe is an umbrella organization of 24 patient associations in 22 countries. Paris-based Neovacs developed its proprietary Kinoid technology to target diseases associated…
Despite progress in diagnosing and managing lupus, 43 percent of those with the disease worry about the physical inactivity and social isolation it causes, finds a new survey released May 10 — World Lupus Day — by the World Lupus Federation (WLF). The Twitter poll, conducted among 2,048 people in…
The New York Legislature has passed a resolution recognizing Governor Andrew Cuomo’s proclamation of May as Lupus Awareness Month in the state. One of the resolution sponsors was the head of New York’s lower house, or Assembly, Fred W. Thiele Jr., whose daughter Josephine has lupus. The resolution builds on…
Booming sales of Benlysta (belimumab) to treat adults with active, autoantibody-positive systemic lupus erythematosus (SLE) have led British pharmaceutical giant GlaxoSmithKline to invest $139 million in its manufacturing plant in Rockville, Maryland. The facility, which will expand the company’s bulk substance production by nearly 50 percent, will produce a new subcutaneous, self-injectable form…
We live in an age where simpler has become better, yet again. A quick Google search will pull up hundreds of articles on how to simplify life, from having children to raising your aging parents. I have yet to come across one that helps those os us with…
The Lupus Foundation of America has started an online platform where patients can provide information about their lives that researchers can use. It will help patients as well as researchers understand lupus better, the foundation said. The Research.forME Lupus Registry will collect patients’ observations about caregivers’ experiences as well. The information will…
I have a chronic illness that I share with millions of people across the globe. And I am constantly apologizing for it. Unfamiliar to the general population, this chronic illness has been nicknamed an “invisible disease” because it is an auto-immune disorder that wreaks havoc internally. In fact, until…
The Lupus Foundation of America has scheduled its 10th Walk to End Lupus Now in New York City for Saturday, May 6, to recognize those living with lupus, honor those lost by the disease and fulfill the organization’s vision of a life free of lupus. Since 2008, participants have raised more than…
Unbeknownst to me, there is a debate raging in online forums — and it has nothing to do with politics. The debate has been going strong for more than 30 years regarding whether birth control and hormone replacement therapy (HRT) causes flare-ups in Lupus patients. Most women are diagnosed…
Nearly 300 leaders in the New York fashion, entertainment and entertainment world gathered at the Plaza Hotel on April 4 for the 8th Annual Lupus Handbag Luncheon & Silent Auction. The event — the first hosted by the newly formed Lupus Research Alliance — raised an unspecified amount of money for lupus…