Scientists studying lupus or rheumatoid arthritis can obtain information on the individual cells of patients taking part in Phase 1 clinical trials, the National Institutes for Health has announced. A key reason the NIH started the Accelerating Medicines Partnership for Rheumatoid Arthritis and Systemic Lupus Erythematosus initiative was to provide researchers with such information.
DxTerity Diagnostics researchers are seeking ways to develop an at-home blood test to monitor individual disease activity in lupus patients. The observational research project, LIFT (Lupus Interval Monitoring to Manage Disease Flare and Enable Treatment Optimization, uses health information and a few drops of blood collected at home to monitor treatment…
A video storytelling campaign and contest, called #IAmInvisibleNoMore, intended to raise awareness of “invisible” disabilities — which can range from lupus to heart disease or depression — has been launched by the Invisible Disabilities Association (IDA) and the private company Allsup. IDA is an advocacy and support group…
Canada’s Aurinia Pharmaceuticals has launched ALL IN, an educational program to raise awareness of lupus nephritis. The disease, which affects about 200,000 Americans, is an inflammation of the kidney caused by systemic lupus erythematosus (SLE). It prevents kidneys from properly removing waste from the blood and controlling the…
Exagen Diagnostics is collaborating with GlaxoSmithKline (GSK) to bring greater awareness of its laboratory tests, meant to facilitate early diagnosis and management of systemic lupus erythematosus (SLE). Under the agreement, GSK will provide information to a group of healthcare professionals about Exagen’s AVISE tests. The aim of both companies…
The Invisible Disabilities Association has made a video to promote public understanding of invisible diseases like lupus and help those who have them talk about them with family and friends. The association raises global awareness of the diseases and provides support and resources to people who have them. Allsup,…
The Lupus Foundation of America recently reviewed the notable achievements and overall advances realized in 2017, finding that significant progress was made both in lupus awareness and in research and advocacy efforts. Highlights for the foundation that helped to advance of lupus awareness and research included the singer Selena Gomez sharing her experience…
The Lupus Multi-Cultural Engagement Partnership (Lupus MCEP) was recently launched at an inaugural meeting in New York City to address the need to increase the number of participants in upcoming lupus clinical trials and to guarantee that ethnic and racial representation is considered. The Lupus MCEP meeting was…
The Oklahoma Medical Research Foundation (OMRF) recently launched the world’s first lupus prevention study, known as the SMILE clinical trial. The Phase 2 study (NCT03030118) seeks to identify individuals at high risk for developing lupus and treat them with an immune-modifying medication before they develop the disease. The overarching…
The University of Alabama at Birmingham (UAB) has received a one-year, $250,000 grant from the Lupus Research Alliance to investigate how lupus develops and why some people are at greater risk for flare-ups and kidney disease. While no one knows exactly why lupus develops, researchers think a…