When Healthcare Professionals Truly Care

When Healthcare Professionals Truly Care

A routine visit with my primary care doctor turned into the biggest reality check of my life. It led to a two-week hospital stay followed by a move to a 24-hour rehabilitation center where my weak immune system required full isolation.

Life seems to build up armor before the battle. I have been home alone so much that I welcome the isolation. Perhaps the time I’ve spent by myself has prepared me for this.

In October 2016, I sold everything I owned and left the U.S. in search of affordable and quality healthcare. I have not lived inside its borders since. My sole reason for leaving was my healthcare; I needed to advocate for myself.

Over the past four years, I have come to feel as if my body will continue to create new issues, and I will never have relief from the pain. I do my best to control what I can and let go of the rest. Because of this, I was not seeing my doctors regularly. I figured, “Why bother?” I thought they would only give me more steroids or another treatment that would cause side effects but no relief.

It was a foolish philosophy on my part. I refused help, not just from my doctors, but from anyone. I thought I would look weak if I asked for or accepted help. I convinced myself that I could power through this if I were determined enough.

Then I went to the U.S. for a routine primary care visit to ensure my veterans benefits didn’t lapse.

Whenever someone would ask me why I lived outside the country, I would tell them it was because of the poor care I had received here. But my 14-day stay at the James A. Haley Veterans’ Hospital in Tampa, Florida, was nothing short of amazing. When I was admitted, many of the staff said they remembered me. I suspected my history as a squeaky wheel was a factor in the excellent care I was receiving. But the staff told me there had been a culture shift and everyone was benefiting from it. I told one of the fantastic nurses who cared for me that if I’d received this level of care when I was trying to get answers, I might not have left the U.S.

columnist pic
From left, nurse Sarah Halabi and her grateful patient, Kellie McRae, at the James A. Haley Veterans’ Hospital in Tampa, Florida. (Courtesy of Kellie McRae)

On my last stay, I complained to administrators. This time, I am putting together a glowing letter to provide a written record of how well I was treated at this hospital. I don’t think my experience was unique. I saw nurses who cared about their patients and co-workers and who are honored to serve those who served. I cried when I left — who does that?

Hospital stays are more difficult when you are not being heard and your concerns are being disregarded. I felt none of that. I am glad I experienced healthcare the way it should be done.

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Note: Lupus News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Lupus News Today, or its parent company, BioNews Services, and are intended to spark discussion about issues pertaining to lupus.

Kellie “Hurricane” McRae has been dubbed a force of nature. She’s the mother of 2 adults who know she is a force to be reckoned with. Diagnosed with Lupus in February 2016 after multiple hospital stays that had her saying her goodbyes to her family & writing her will she became a very vocal advocate. She has openly shared via Periscope what she calls coping while scoping and has helped many who got a fresh diagnosis as well as those who have been battling for a while. Kellie has taken on the idea that food is medicine and shares frequently the chemical ingredients found in some foods and she also shares recipe’s for great food. Food is medicine is part of her philosophy. After Lupus forced her to walk away from a 17 year career in Real Estate, she began an online business helping others go from “Coping to Cash flow” because not everyone gets approved for disability and still need to pay bills despite the unpredicatable issues that Lupus causes.
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Kellie “Hurricane” McRae has been dubbed a force of nature. She’s the mother of 2 adults who know she is a force to be reckoned with. Diagnosed with Lupus in February 2016 after multiple hospital stays that had her saying her goodbyes to her family & writing her will she became a very vocal advocate. She has openly shared via Periscope what she calls coping while scoping and has helped many who got a fresh diagnosis as well as those who have been battling for a while. Kellie has taken on the idea that food is medicine and shares frequently the chemical ingredients found in some foods and she also shares recipe’s for great food. Food is medicine is part of her philosophy. After Lupus forced her to walk away from a 17 year career in Real Estate, she began an online business helping others go from “Coping to Cash flow” because not everyone gets approved for disability and still need to pay bills despite the unpredicatable issues that Lupus causes.

2 comments

  1. Brenda Donofrio says:

    I’m glad to hear your doing better. Now it’s my turn. I overdid it during the power outage. Now I’m paying for it. I can’t get the rest I need even on my days off from my never part time job. I have family obligations, and a home to keep up. Have some suggestions?

    • Kellie McRae says:

      Hi Brenda,

      One of the things I have learned is the to do list will always have to do’s on it. With my energy and endurance levels in the garbage often, I tend to prioritize things. Fortunately for me, my children are adults so my family obligations are not as heavy as when they were home. If they play extracurricula, usually there are other parents taking their kids, perhaps one day a week you can take someone’s kids and they can do the same for you and you can take a break. I also try to sit and do certain chores when possible such as food prep (often we stand at the counter for this) I also know that there are legitimate companies (American Express being one of them) that will allow you to work from home so even if you need to continue to work, perhaps being able to do it without a commute and having to get dressed can help save you some energy and some steps. I hope this helps.

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